Table 1 Participant characteristics and interview details of participants with HSV encephalitis
Person with HSV encephalitis | Age at interview | Gender M/F | Timing of interview post-discharge | Interview details | Duration of stay in hospital (days) | Destination on discharge | Employment status at time of interview |
|---|---|---|---|---|---|---|---|
Retrospective Cohort | |||||||
1 | 45 | M | 6Â years | Interviewed with partner | 22 | Home | No longer working: receiving Disability Living Allowance |
2 | 47 | F | 7 Years | Interviewed with mother | 211 | Home | No longer working: receives income from previous employer’s insurance |
3 | 43 | M | 6Â years | Interviewed with partner | 20 | Home | No longer working: receiving Disability Living Allowance |
4 | 58 | M | 5Â years 10Â months | Interviewed with wife | 30 | Home | Employed: took a role with fewer responsibilities after being made redundant. |
5 | 15 | M | 1 year 11 months | Interview conducted with the parents | 63 | Home | N/A – in school |
6 | 62 | F | 5Â years 9Â months | Interviewed alone | 48 | Home | No longer working: sold her business |
7 | 68 | F | 7Â years 1Â month | Interviewed alone | 16 | Home | Took early retirement |
8 | 55 | F | 5Â years | Interviewed with friend | 15 | Home | Took early retirement |
9 | 36 | M | 1Â year | Interviewed with wife | 10 (continued acyclovir at home) | Home | Employed: took a role with fewer responsibilities post-encephalitis |
10 | 5 | M | 5 years 7 months | Interview conducted with the child’s mother | 37 | Home | N/A – in school |
11 | 56 | F | 3Â years 6Â months | Interview conducted with husband | 126 | Neuro-rehabilitation | No longer able to work |
12 | 20 | F | 5Â years 10Â months | Interviewed alone | 39 | Home | Student (university) |
13 | 34 | F | 4Â years 4Â months | Interviewed with partner | 21 | Home | No longer working: receiving Disability Living Allowance |
14 | 55 | F | 7Â years 7Â months | Interviewed alone | 12 | Home | Took early retirement |
15 | 6 | M | 3 years | Interview conducted with the child’s father | 42 | Home | N/A – in school |
16 | 33 | M | 1Â year 2Â months | Interviewed with Mother | 25 | Home | Employed: returned to work |
17 | 61 | F | 6Â years 5Â months | Interviewed alone | 58 | Home (offered rehabilitation but declined) | Took early retirement |
Prospective Cohort | |||||||
1 | 69 | M | 5Â months | Interviewed alone | 45 | Rehabilitation | Already retired |
2 | 58 | M | 5Â months | Interviewed with wife | 24 | Home | Self-employed: receiving Employment Support Allowance |
3 | 27 | M | 3Â months | Interviewed alone | 52 | Rehabilitation | Employed: returned to work |
4 | 61 | F | 3Â months | Interviewed with husband | 117 | Neuro-rehabilitation | Already retired |
5 | 67 | M | 3Â months | Interviewed with wife and daughter | 40 | Home | Already retired |
6 | 77 | F | 5Â months | Interview conducted with husband and son (patient died) | 122 | Nursing home | Patient died |
7 | 35 | M | 4Â months | Interviewed alone | 18 | Home | Employed: returned to work |
8 | 58 | F | 6Â months | Interviewed alone | 60 | Rehabilitation | Employed: returned to work |
9 | 75 | M | 3Â months | Interviewed with wife | 52 | Rehabilitation | Already retired |
10 | 63 | F | 4Â months | Interviewed with sister | 29 | Home | Never worked |
11 | 6 months | F | 3 months | Interview conducted with the child’s mother | 3 (treatment continued with home care team) | Home | N/A |
12 | 2 | M | 3 months | Interview conducted with the child’s mother | 25 | Home | N/A |