Table 7 Sample participant feedback related to conceptual equivalence

Participation

“N/A - does not apply to the age of my son”

“She doesn’t do any activity because she is a baby.” (Ella todavía no hace ninguna actividad porque es una bebe.)

“He is too young to do his self care.” (Es pequeño para hacer su mantenimiento.)

“It is very difficult [to select responses] because my daughter can’t fend for herself because she has an intellectual delay.” (Es muy difícil porque mi hija no puede valerse por si sola tiene un retraso en su cerebro.)

Participation Dimensions

Involvement

Define “involved”

“It is the opportunity provided for their physical and mental development. Through activities, techniques, and strategies, the child can develop, improve, or acquire skills and abilities.” (Es la oportunidad que se le brinda para su desarrollo físico y mental. A través de actividades, técnicas y estrategias, el niño puede desarrollar, incrementar ó adquirir habilidades y destrezas.)

“What he does alone and with help.” (Que es lo que el hace solo y con ayuda.)

“For a child to be involved in an activity, … they also need to be able to do things on their own.”

Describe how you selected “how involved” your child is in an activity

“Response [for Celebrations at Home] is based on how often my child has a sensory meltdown and refuses to participate during these celebrations.”

“She is not involved because she doesn’t know how to do it herself if alone.” (No está involucrado porque no sabe valerse por si sola.)

Frequency

“Response is based on how often my child is combative during the bedtime routine.”

“My daughter cannot participate because of her condition.” (Mi hija no puede participar por su condición.)