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Table 4 Overall change in health and CFS/ME across CFS/ME specialist services

From: Specialist treatment of chronic fatigue syndrome/ME: a cohort study among adult patients in England

   A B C D E F H I J K Overall
Overall, how much do you feel your health has changed since you first came to the CFS/ME service? Much better or very much better 26.6% (17/64) 30.4% (7/23) 31.8% (7/22) 21.7% (5/23) 18.5% (15/81) 40.4% (23/57) 38.2% (21/55) 23.1% (6/26) 20.8% (10/48) 21.1% (4/19) 27.5% (115/418)
A little better, no change or a little worse 64.1% (41/64) 65.2% (15/23) 45.5% (10/22) 65.2% (15/23) 76.5% (62/81) 54.4% (31/57) 56.4% (31/55) 61.5% (16/26) 75.0% (36/48) 68.4% (13/19) 64.6% (270/418)
Much worse or very much worse 9.4% (6/64) 4.4% (1/23) 22.7% (5/22) 13.0% (3/23) 4.9% (4/81) 5.3% (3/57) 5.5% (3/55) 15.4% (4/26) 4.2% (2/48) 10.5% (2/19) 7.9% (33/418)
Overall, how much do you feel your CFS/ME has changed since you first came to the CFS/ME service? Much better or very much better 23.8% (15/63) 30.4% (7/23) 31.8% (7/22) 20.0% (4/20) 21.2% (14/66) 35.1% (20/57) 34.6% (19/55) 23.1% (6/26) 12.8% (6/47) 33.3% (6/18) 26.2% (104/397)
A little better, no change or a little worse 71.4% (45/63) 60.9% (14/23) 59.1% (13/22) 65.0% (13/20) 72.7% (48/66) 56.1% (32/57) 61.8% (34/55) 69.2% (18/26) 76.6% (36/47) 61.1% (11/18) 66.5% (264/397)
Much worse or very much worse 4.8% (3/63) 8.7% (2/23) 9.1% (2/22) 15.0% (3/20) 6.1% (4/66) 8.8% (5/57) 3.6% (2/55) 7.7% (2/26) 10.6% (5/47) 5.6% (1/18) 7.3% (29/397)
Do you think that you are still suffering from CFS/ME? Yes 78.7% (37/47) 81.8% (18/22) 81.0% (17/21) 85.0% (17/20) 90.4% (66/73) 87.3% (48/55) 86.4% (51/59) 92.3% (24/26) 92.2% (47/51) 94.1% (16/17) 87.2% (341/391)
No 4.3% (2/47) 4.6% (1/22) 0.0% (0/21) 10.0% (2/20) 2.7% (2/73) 1.8% (1/55) 0.0% (0/59) 3.9% (1/26) 3.9% (2/51) 0.0% (0/17) 2.8% (11/391)
  Uncertain 17.0% (8/47) 13.6% (3/22) 19.1% (4/21) 5.0% (1/20) 6.9% (5/73) 10.9% (6/55) 13.6% (8/59) 3.9% (1/26) 3.9% (2/51) 5.9% (1/17) 10.0% (39/391)