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Table 2 Mean change (95% CI) in patient-reported measures between assessment and 1-year follow-up across CFS/ME specialist services

From: Specialist treatment of chronic fatigue syndrome/ME: a cohort study among adult patients in England

  A (n = 64) B (n = 22) C (n = 23) D (n = 25) E (n = 83) F (n = 58) H (n = 60) I (n = 26) J (n = 51) K (n = 20)
Chalder Fatigue Scale (range 0–33) −5.92 (−7.38, −4.46) −3.18 (−6.02, −0.34) −5.22 (−9.07, −1.36) −5.24 (−8.53, −1.95) −5.89 (−7.57, −4.21) −7.41 (−9.62, −5.21) −8.78 (−10.8, −6.73) −3.27 (−6.21, −0.32) −3.75 (−5.59, −1.90) −9.50 (−13.7, −5.63)
SF36 Physical Function Subscale (range 0–100) 0.80 (−4.94, 6.53) 4.26 (−3.63, 12.1) 5.00 (−3.93, 13.9) 9.40 (2.72, 16.1) 3.48 (−1.37, 8.32) 5.02 (−1.86, 11.9) 6.45 (0.18, 12.7) 2.12 (−3.82, 8.05) 1.86 (−2.69, 6.41) 10.0 (2.21, 17.8)
Work & Social Adjustment Scale (range 0–40) −2.37 (−4.20, −0.54) −3.00 (−6.17, 0.17) −2.23 (−6.68, 2.23) −5.10 (−8.53, −1.67) −3.47 (−4.99, −1.94) −5.07 (−7.35, −2.79) −4.24 (−6.58, −1.90) −1.69 (−4.19, 0.81) −1.66 (−3.53, 0.21) −5.30 (−7.85, 2.75)
Visual analogue pain rating scale (range 0–100) 0.42 (−6.82, 7.67) 0.13 (−8.54, 8.80) −3.38 (−15.5, 8.71) −9.48 (−23.0, 4.00) −2.95 (−9.31, 3.40) −1.60 (−10.2, 7.01) −12.7 (−19.0, −6.36) −7.16 (−14.5, 0.23) −3.38 (−9.27, 2.52) −8.29 (−19.8, 3.24)
HADS Anxiety Score (range 0–21) 0.39 (−0.83, 1.61) 0.78 (−0.18, 1.74) −1.23 (−3.25, 0.80) −0.42 (−2.16, 1.33) −0.69 (−1.44, 0.06) −1.98 (−3.01, −0.95) −1.53 (−2.54, −0.52) −0.35 (−1.67, 0.98) 0.61 (−0.32, 1.53) −0.18 (−1.92, 1.56)
HADS Depression Score (range 0–21) −0.72 (−1.78, 0.34) −0.48 (−1.73, 0.77) −1.41 (−3.35, 0.53) −0.92 (−2.44, 0.60) −1.80 (−2.48, −1.12) −2.31 (−3.34, −1.28) −2.67 (−3.55, −1.78) 0.58 (−0.76, 1.91) 0.04 (−0.81, 0.88) −2.24 (−3.78, −0.69)
Epworth Sleepiness Scale (range 0–24) −1.28 (−2.72, 0.15) −0.65 (−2.19, 0.89) −1.38 (−3.20, 0.44) −0.67 (−2.58, 1.25) −1.15 (−2.07, −0.22) −1.69 (−2.96, −0.41) −1.41 (−2.59, −0.23) 0.96 (−0.88, 2.80) −0.65 (−1.46, 0.16) −1.59 (−3.63, 0.45)
Jenkins Sleep Jenkins (range 0–20) −1.32 (−2.64, −0.00) −2.26 (−4.06, −0.47) −1.76 (−3.85, 0.33) −2.15 (−3.74, −0.56) −0.86 (−1.77, 0.04) −1.64 (−3.01, −0.27) −1.97 (−3.36, −0.57) −1.04 (−2.62, 0.54) −0.69 (−1.77, 0.39) −0.82 (−3.43, 1.78)
CIS20R Fatigue Subscale (range 8–56) −5.67 (−7.89, −3.55) −3.58 (−7.34, 0.18) −8.35 (−12.9, −3.78) −2.95 (−6.97, 1.07) −3.29 (−5.00, −1.58) −5.85 (−8.49, −3.22) −7.25 (−10.1, −4.38) −3.35 (−5.25, −1.44) −2.02 (−3.61, −0.43) −4.94 (−8.85, −1.03)
CIS20R Concentration Subscale (range 5–35) −1.81 (−3.55, −0.07) −2.68 (−5.72, 0.35) −4.25 (−7.73, −0.77) −2.90 (−5.43, −0.37) −1.54 (−2.98, −0.11) −3.82 (−5.66, −1.98) −4.52 (−6.55, −2.48) −2.54 (−4.82, −0.25) −1.63 (−3.07, −0.18) −1.94 (−5.03, 1.15)
CIS20R Motivation Subscale (range 4–28) −2.21 (−3.71, −0.72) −2.37 (−4.48, −0.26) −1.90 (−4.36, 0.56) −1.80 (−4.23, 0.63) −1.75 (−2.90, −0.60) −3.27 (−4.64, −1.91) −4.29 (−5.98, −2.59) −0.58 (−2.18, 1.03) −1.63 (−3.12, −0.13) −3.65 (−6.03, −1.26)
CIS20R Activity Subscale (range 3–21) −2.23 (−3.70, −0.77) −1.74 (−4.35, 0.87) −1.30 (−3.19, 0.59) −0.80 (−3.53, 1.93) −1.63 (−2.85, −0.42) −3.05 (−4.60, −1.51) −3.29 (−4.81, −1.77) −1.08 (−3.02, 0.87) −0.96 (−2.17, 0.25) −1.29 (−4.37, 1.79)