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Table 5 Statements meeting consensus criterion related to themes 1 & 2

From: Cancer related fatigue: implementing guidelines for optimal management

Theme 1: A need to balance simplicity with adequate detail in guideline

Survey

N

Agree (n)

Agree (%)

 The guideline should be written for consumers in lay language with a simple rationale for each recommendation

C2

59

59

100

 A recommended valid patient self-report measure for fatigue and related constructs would be helpful to monitor progress across settings

HP2

32

32

100

 A self-report questionnaire (such as the Brief Fatigue Inventory) that measures fatigue severity and impact could be useful as part of focused fatigue assessment and history taking

HP2

32

30

93.7

 Referral pathways with capacity for local adaptation would be clinically useful

HP2

31

29

93.5

 A screening hand-out could contain simple information including diagrams about how to rate your fatigue level, and what to do for different levels of fatigue

C2

59

55

93.2

 Information about how to get help for fatigue management in my local area would be useful

C2

59

54

91.5

 The guideline should contain links to additional detail about specific contributing factors such as medications, electrolyte levels, nutritional parameters and rate of physical activity change

HP2

32

28

90.3

 Information and education about fatigue should be offered at different levels of detail (e.g. basic, standard, detailed)

C2

59

53

89.8

 A short-list of accessible valid fatigue screening tools would be helpful

HP2

32

28

87.5

 The guideline should contain links to additional detail about physical examinations and significance of findings

HP2

31

27

87.1

 Appendices with details of assessments/interventions

HP2

31

25

80.6

 I find diagrams such as flow-charts helpful to understand and learn new information

C2

59

46

78.0

 Stratified assessment guide

HP2

31

24

77.4

Theme 2: Define roles for knowledgeable health professionals

Survey

N

Agree (n)

Agree (%)

 I want to know which health professional is overseeing and monitoring my fatigue levels and supporting me

C2

59

58

98.3

 A practice nurse (or other designated professional) could screen for tachycardia, shortness of breath and signs of nutritional deficiencies (oral) and anaemia (eyes) and refer to the appropriate professional for further assessment

HP2

31

30

96.8

 Gait, posture, muscle wasting and range of motion would ideally be assessed by a relevant health professional; if appropriate

HP2

31

30

96.8

 Make it real. I would like health professionals to know about how fatigue has affected real people like me

C2

59

57

96.6

 All clinicians should be able to screen for fatigue

HP2

32

30

93.8

 On-line education about managing fatigue should be available to all health professionals involved in my cancer care

C2

59

55

93.2

 Determination of which HPs should take responsibility for assessments, interventions and follow up would improve consistency of practice

HP2

31

27

87.1

 What is your preferred method/s of learning about assessment and management of CRF? Interactive website

HP2

31

24

77.4