From: Cancer related fatigue: implementing guidelines for optimal management
Theme 1: A need to balance simplicity with adequate detail in guideline | Survey | N | Agree (n) | Agree (%) |
 The guideline should be written for consumers in lay language with a simple rationale for each recommendation | C2 | 59 | 59 | 100 |
 A recommended valid patient self-report measure for fatigue and related constructs would be helpful to monitor progress across settings | HP2 | 32 | 32 | 100 |
 A self-report questionnaire (such as the Brief Fatigue Inventory) that measures fatigue severity and impact could be useful as part of focused fatigue assessment and history taking | HP2 | 32 | 30 | 93.7 |
 Referral pathways with capacity for local adaptation would be clinically useful | HP2 | 31 | 29 | 93.5 |
 A screening hand-out could contain simple information including diagrams about how to rate your fatigue level, and what to do for different levels of fatigue | C2 | 59 | 55 | 93.2 |
 Information about how to get help for fatigue management in my local area would be useful | C2 | 59 | 54 | 91.5 |
 The guideline should contain links to additional detail about specific contributing factors such as medications, electrolyte levels, nutritional parameters and rate of physical activity change | HP2 | 32 | 28 | 90.3 |
 Information and education about fatigue should be offered at different levels of detail (e.g. basic, standard, detailed) | C2 | 59 | 53 | 89.8 |
 A short-list of accessible valid fatigue screening tools would be helpful | HP2 | 32 | 28 | 87.5 |
 The guideline should contain links to additional detail about physical examinations and significance of findings | HP2 | 31 | 27 | 87.1 |
 Appendices with details of assessments/interventions | HP2 | 31 | 25 | 80.6 |
 I find diagrams such as flow-charts helpful to understand and learn new information | C2 | 59 | 46 | 78.0 |
 Stratified assessment guide | HP2 | 31 | 24 | 77.4 |
Theme 2: Define roles for knowledgeable health professionals | Survey | N | Agree (n) | Agree (%) |
 I want to know which health professional is overseeing and monitoring my fatigue levels and supporting me | C2 | 59 | 58 | 98.3 |
 A practice nurse (or other designated professional) could screen for tachycardia, shortness of breath and signs of nutritional deficiencies (oral) and anaemia (eyes) and refer to the appropriate professional for further assessment | HP2 | 31 | 30 | 96.8 |
 Gait, posture, muscle wasting and range of motion would ideally be assessed by a relevant health professional; if appropriate | HP2 | 31 | 30 | 96.8 |
 Make it real. I would like health professionals to know about how fatigue has affected real people like me | C2 | 59 | 57 | 96.6 |
 All clinicians should be able to screen for fatigue | HP2 | 32 | 30 | 93.8 |
 On-line education about managing fatigue should be available to all health professionals involved in my cancer care | C2 | 59 | 55 | 93.2 |
 Determination of which HPs should take responsibility for assessments, interventions and follow up would improve consistency of practice | HP2 | 31 | 27 | 87.1 |
 What is your preferred method/s of learning about assessment and management of CRF? Interactive website | HP2 | 31 | 24 | 77.4 |