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Table 1 Example of themes and structure

From: Dignity in people with frontotemporal dementia and similar disorders — a qualitative study of the perspective of family caregivers

Unit of meaning

Condensation

Sub-theme

Central theme

“I do not get any information about activities he participates in. But then you discover that he has been participating in something, but you don’t get any notice beforehand. They could make a plan over expected activities and inform the relatives that they were welcome to participate”

“Other patients are coming into her room, laying down in her bed, and they are coming in … in to use her toilet … and things like that … that has nothing to do with the personnel … but it has to do with the whole situation … making her really angry and frustrated”

Information about ongoing activities for the patients is lacking. An activity plan, that involves relatives, is requested.

Other patients enter the room, using the bed and toilet. Being deprived of privacy causes anger and frustration.

The relatives are not familiar with the department’s activities and daily routines.

The relatives would like to participate in activities.

Challenging to organize care that implies respecting and safeguarding patients with different needs.

Those that function better than others may feel humiliated.

Involvement of relatives

Undignified life situation