TY - JOUR AU - Collin, S. M. AU - Nikolaus, S. AU - Heron, J. AU - Knoop, H. AU - White, P. D. AU - Crawley, E. PY - 2016 DA - 2016// TI - Chronic fatigue syndrome (CFS) symptom-based phenotypes in two clinical cohorts of adult patients in the UK and The Netherlands JO - J Psychosom Res VL - 81 UR - https://doi.org/10.1016/j.jpsychores.2015.12.006 DO - 10.1016/j.jpsychores.2015.12.006 ID - Collin2016 ER - TY - STD TI - Nacul LC, Lacerda EM, Campion P, Pheby D, Drachler MD, Leite JC, et al. The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers. BMC Public Health. 2011;11:402. ID - ref2 ER - TY - JOUR AU - Sabes-Figuera, R. AU - McCrone, P. AU - Hurley, M. AU - King, M. AU - Donaldson, A. N. AU - Ridsdale, L. PY - 2010 DA - 2010// TI - The hidden cost of chronic fatigue to patients and their families JO - BMC Health Serv Res VL - 10 UR - https://doi.org/10.1186/1472-6963-10-56 DO - 10.1186/1472-6963-10-56 ID - Sabes-Figuera2010 ER - TY - JOUR AU - Collin, S. M. AU - Crawley, E. AU - May, M. T. AU - Sterne, J. A. AU - Hollingworth, W. PY - 2011 DA - 2011// TI - The impact of CFS/ME on employment and productivity in the UK: a cross-sectional study based on the CFS/ME national outcomes database JO - BMC Health Serv Res VL - 11 UR - https://doi.org/10.1186/1472-6963-11-217 DO - 10.1186/1472-6963-11-217 ID - Collin2011 ER - TY - STD TI - Collin SM, Sterne JA, Hollingworth W, May MT, Crawley E. Equity of access to specialist chronic fatigue syndrome (CFS/ME) services in England (2008–2010): a national survey and cross-sectional study. BMJ Open. 2012;2(4):e001417:1-8. ID - ref5 ER - TY - BOOK AU - Pinching, A. J. AU - Noons, P. PY - 2006 DA - 2006// TI - CFS/ME Service Investment Programme 2004–2006 Programme Report ID - Pinching2006 ER - TY - STD TI - National Institute for Health and Care Excellence (NICE): Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children (NICE guidelines CG53). London: NICE; 2007. ID - ref7 ER - TY - JOUR AU - Anderson, V. R. AU - Jason, L. A. AU - Hlavaty, L. E. AU - Porter, N. AU - Cudia, J. PY - 2012 DA - 2012// TI - A review and meta-synthesis of qualitative studies on myalgic encephalomyelitis/chronic fatigue syndrome JO - Patient Educ Couns VL - 86 UR - https://doi.org/10.1016/j.pec.2011.04.016 DO - 10.1016/j.pec.2011.04.016 ID - Anderson2012 ER - TY - STD TI - Drachler ML, de Carvalho Leite JC, Hooper L, Hong CS, Pheby D, Nacul L, et al. The expressed needs of people with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A systematic review. BMC Public Health. 2009;9(1):1–15. ID - ref9 ER - TY - JOUR AU - Pemberton, S. AU - Cox, D. L. PY - 2014 DA - 2014// TI - Experiences of daily activity in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and their implications for rehabilitation programmes JO - Disabil Rehabil VL - 36 UR - https://doi.org/10.3109/09638288.2013.874503 DO - 10.3109/09638288.2013.874503 ID - Pemberton2014 ER - TY - JOUR AU - Stormorken, E. AU - Jason, L. A. AU - Kirkevold, M. PY - 2015 DA - 2015// TI - Fatigue in adults with post-infectious fatigue syndrome: a qualitative content analysis JO - BMC Nurs VL - 14 UR - https://doi.org/10.1186/s12912-015-0115-5 DO - 10.1186/s12912-015-0115-5 ID - Stormorken2015 ER - TY - JOUR AU - Pinxsterhuis, I. AU - Strand, E. B. AU - Sveen, U. PY - 2015 DA - 2015// TI - Coping with chronic fatigue syndrome: a review and synthesis of qualitative studies JO - Fatigue Biomed Health Behav VL - 3 UR - https://doi.org/10.1080/21641846.2015.1035519 DO - 10.1080/21641846.2015.1035519 ID - Pinxsterhuis2015 ER - TY - JOUR AU - Larun, L. AU - Malterud, K. PY - 2007 DA - 2007// TI - Identity and coping experiences in Chronic Fatigue Syndrome: a synthesis of qualitative studies JO - Patient Educ Couns VL - 69 UR - https://doi.org/10.1016/j.pec.2007.06.008 DO - 10.1016/j.pec.2007.06.008 ID - Larun2007 ER - TY - JOUR AU - Asbring, P. AU - Narvanen, A. L. PY - 2002 DA - 2002// TI - Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia JO - Qual Health Res VL - 12 ID - Asbring2002 ER - TY - STD TI - Lian OS, Lorem GF: "I Do Not Really Belong Out There Anymore": Sense of Being and Belonging Among People With Medically Unexplained Long-Term Fatigue. Qual Health Res. 2016;27(4):474–86. ID - ref15 ER - TY - JOUR AU - Brooks, J. AU - King, N. AU - Wearden, A. PY - 2014 DA - 2014// TI - Couples' experiences of interacting with outside others in chronic fatigue syndrome: a qualitative study JO - Chronic Illn VL - 10 UR - https://doi.org/10.1177/1742395312474478 DO - 10.1177/1742395312474478 ID - Brooks2014 ER - TY - STD TI - de Carvalho Leite JC, de L Dachler M, Killett A, Kale S, Nacul L, Mcarthur M, et al. Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis. Int J Equity Health. 2011;10:46. ID - ref17 ER - TY - JOUR AU - Hansen, A. H. AU - Lian, O. S. PY - 2016 DA - 2016// TI - How do women with chronic fatigue syndrome/myalgic encephalomyelitis rate quality and coordination of healthcare services? A cross-sectional study JO - BMJ Open VL - 6 UR - https://doi.org/10.1136/bmjopen-2015-010277 DO - 10.1136/bmjopen-2015-010277 ID - Hansen2016 ER - TY - JOUR AU - Clarke, J. N. AU - James, S. PY - 2003 DA - 2003// TI - The radicalized self: the impact on the self of the contested nature of the diagnosis of chronic fatigue syndrome JO - Soc Sci Med VL - 57 UR - https://doi.org/10.1016/S0277-9536(02)00515-4 DO - 10.1016/S0277-9536(02)00515-4 ID - Clarke2003 ER - TY - JOUR AU - Travers, M. K. AU - Lawler, J. PY - 2008 DA - 2008// TI - Self within a climate of contention: Experiences of chronic fatigue syndrome JO - Soc Sci Med VL - 66 UR - https://doi.org/10.1016/j.socscimed.2007.09.003 DO - 10.1016/j.socscimed.2007.09.003 ID - Travers2008 ER - TY - STD TI - Horton SM, Poland F, Kale S, Drachler Mde L, de Carvalho Leite JC, McArthur MA, et al. Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adults: a qualitative study of perspectives from professional practice. BMC Fam Pract. 2010;11:89. ID - ref21 ER - TY - JOUR AU - Mallet, M. AU - King, E. AU - White, P. D. PY - 2016 DA - 2016// TI - A UK based review of recommendations regarding the management of chronic fatigue syndrome JO - J Psychosom Res VL - 88 UR - https://doi.org/10.1016/j.jpsychores.2016.07.008 DO - 10.1016/j.jpsychores.2016.07.008 ID - Mallet2016 ER - TY - JOUR AU - Clark, A. M. PY - 1998 DA - 1998// TI - The qualitative-quantitative debate: moving from positivism and confrontation to post-positivism and reconciliation JO - J Adv Nurs VL - 27 UR - https://doi.org/10.1046/j.1365-2648.1998.00651.x DO - 10.1046/j.1365-2648.1998.00651.x ID - Clark1998 ER - TY - STD TI - Creswell JW. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. Thousand Oaks: SAGE Publications; 2012. ID - ref24 ER - TY - STD TI - Willis JW, Jost M, Nilakanta R. Foundations of Qualitative Research: Interpretive and Critical Approaches. Thousand Oaks: SAGE Publications; 2007. ID - ref25 ER - TY - STD TI - Faulkner A, Layzell S. Strategies for Living: A report on user-led research. London; 1999. ID - ref26 ER - TY - JOUR AU - Braun, V. AU - Clarke, V. PY - 2006 DA - 2006// TI - Using thematic analysis in psychology JO - Qual Res Psychol VL - 3 UR - https://doi.org/10.1191/1478088706qp063oa DO - 10.1191/1478088706qp063oa ID - Braun2006 ER - TY - STD TI - Smith JA. Qualitative Psychology: A Practical Guide to Research Methods. Thousand Oaks: SAGE Publications; 2015. ID - ref28 ER - TY - STD TI - Glaser BG, Strauss AL. The Discovery of Grounded Theory: Strategies for Qualitative Research. New Brunswick: Aldine Transaction; 2009. ID - ref29 ER - TY - STD TI - Crawley E, Collin SM, White PD, Rimes K, Sterne JA, May MT, et al. Treatment outcome in adults with chronic fatigue syndrome: a prospective study in England based on the CFS/ME National Outcomes Database. QJM. 2013;106(6):555–65. ID - ref30 ER - TY - JOUR AU - Beasant, L. AU - Mills, N. AU - Crawley, E. PY - 2014 DA - 2014// TI - Adolescents and mothers value referral to a specialist service for chronic fatigue syndrome or myalgic encephalopathy (CFS/ME) JO - Prim Health Care Res Dev VL - 15 UR - https://doi.org/10.1017/S1463423613000121 DO - 10.1017/S1463423613000121 ID - Beasant2014 ER - TY - JOUR AU - Brooks, J. M. AU - Daglish, J. AU - Wearden, A. J. PY - 2013 DA - 2013// TI - Attributions, distress and behavioural responses in the significant others of people with chronic fatigue syndrome JO - J Health Psychol VL - 18 UR - https://doi.org/10.1177/1359105312464670 DO - 10.1177/1359105312464670 ID - Brooks2013 ER - TY - STD TI - Bakken IJ, Tveito K, Gunnes N, Ghaderi S, Stoltenberg C, Trogstad L, et al. Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway 2008-2012. BMC Med. 2014;12(1):167. ID - ref33 ER - TY - JOUR AU - Poppe, C. AU - Petrovic, M. AU - Vogelaers, D. AU - Crombez, G. PY - 2013 DA - 2013// TI - Cognitive behavior therapy in patients with chronic fatigue syndrome: the role of illness acceptance and neuroticism JO - J Psychosom Res VL - 74 UR - https://doi.org/10.1016/j.jpsychores.2013.02.011 DO - 10.1016/j.jpsychores.2013.02.011 ID - Poppe2013 ER - TY - JOUR AU - Flo, E. AU - Chalder, T. PY - 2014 DA - 2014// TI - Prevalence and predictors of recovery from chronic fatigue syndrome in a routine clinical practice JO - Behav Res Ther VL - 63 UR - https://doi.org/10.1016/j.brat.2014.08.013 DO - 10.1016/j.brat.2014.08.013 ID - Flo2014 ER - TY - JOUR AU - Chalder, T. AU - Goldsmith, K. A. AU - White, P. D. AU - Sharpe, M. AU - Pickles, A. R. PY - 2015 DA - 2015// TI - Rehabilitative therapies for chronic fatigue syndrome: a secondary mediation analysis of the PACE trial JO - Lancet Psychiatry VL - 2 UR - https://doi.org/10.1016/S2215-0366(14)00069-8 DO - 10.1016/S2215-0366(14)00069-8 ID - Chalder2015 ER - TY - JOUR AU - Wearden, A. J. AU - Emsley, R. PY - 2013 DA - 2013// TI - Mediators of the effects on fatigue of pragmatic rehabilitation for chronic fatigue syndrome JO - J Consult Clin Psychol VL - 81 UR - https://doi.org/10.1037/a0033561 DO - 10.1037/a0033561 ID - Wearden2013 ER - TY - JOUR AU - Christensen, S. S. AU - Frostholm, L. AU - Ornbol, E. AU - Schroder, A. PY - 2015 DA - 2015// TI - Changes in illness perceptions mediated the effect of cognitive behavioural therapy in severe functional somatic syndromes JO - J Psychosom Res VL - 78 UR - https://doi.org/10.1016/j.jpsychores.2014.12.005 DO - 10.1016/j.jpsychores.2014.12.005 ID - Christensen2015 ER - TY - JOUR AU - Schreurs, K. M. AU - Veehof, M. M. AU - Passade, L. AU - Vollenbroek-Hutten, M. M. PY - 2011 DA - 2011// TI - Cognitive behavioural treatment for chronic fatigue syndrome in a rehabilitation setting: effectiveness and predictors of outcome JO - Behav Res Ther VL - 49 UR - https://doi.org/10.1016/j.brat.2011.09.004 DO - 10.1016/j.brat.2011.09.004 ID - Schreurs2011 ER - TY - STD TI - Densham S, Williams D, Johnson A, Turner-Cobb JM. Enhanced psychological flexibility and improved quality of life in chronic fatigue syndrome/myalgic encephalomyelitis. J Psychosom Res. 2016;88:42–7. ID - ref40 ER - TY - JOUR AU - Query, M. AU - Taylor, R. R. PY - 2006 DA - 2006// TI - Linkages between goal attainment and quality of life for individuals with chronic fatigue syndrome JO - Occup Ther Health Care VL - 19 UR - https://doi.org/10.1080/J003v19n04_02 DO - 10.1080/J003v19n04_02 ID - Query2006 ER - TY - JOUR AU - Geraghty, K. J. AU - Esmail, A. PY - 2016 DA - 2016// TI - Chronic fatigue syndrome: is the biopsychosocial model responsible for patient dissatisfaction and harm? JO - Br J Gen Pract VL - 66 UR - https://doi.org/10.3399/bjgp16X686473 DO - 10.3399/bjgp16X686473 ID - Geraghty2016 ER - TY - JOUR AU - McDermott, C. AU - Lynch, J. AU - Leydon, G. M. PY - 2011 DA - 2011// TI - Patients' hopes and expectations of a specialist chronic fatigue syndrome/ME service: a qualitative study JO - Fam Pract VL - 28 UR - https://doi.org/10.1093/fampra/cmr016 DO - 10.1093/fampra/cmr016 ID - McDermott2011 ER - TY - JOUR AU - Heins, M. J. AU - Knoop, H. AU - Bleijenberg, G. PY - 2013 DA - 2013// TI - The role of the therapeutic relationship in cognitive behaviour therapy for chronic fatigue syndrome JO - Behav Res Ther VL - 51 UR - https://doi.org/10.1016/j.brat.2013.02.001 DO - 10.1016/j.brat.2013.02.001 ID - Heins2013 ER - TY - STD TI - Pinxsterhuis I, Strand EB, Stormorken E, Sveen U. From chaos and insecurity to understanding and coping: experienced benefits of a group-based education programme for people with chronic fatigue syndrome. Br J Guid Couns. 2015;43(4):463–75. ID - ref45 ER - TY - STD TI - Baker SE, Edwards R. How many qualitative interviews is enough? Expert voices and early career reflections on sampling and cases in qualitative research. Southampton: National Centre for Research Methods; 2012. ID - ref46 ER - TY - JOUR AU - Wiborg, J. F. AU - Werf, S. AU - Prins, J. B. AU - Bleijenberg, G. PY - 2010 DA - 2010// TI - Being homebound with chronic fatigue syndrome: A multidimensional comparison with outpatients JO - Psychiatry Res VL - 177 UR - https://doi.org/10.1016/j.psychres.2010.02.010 DO - 10.1016/j.psychres.2010.02.010 ID - Wiborg2010 ER - TY - STD TI - Pendergrast T, Brown A, Sunnquist M, Jantke R, Newton JL, Strand EB, Jason LA. Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome. Chronic Illn. 2016;12(4):292–307. ID - ref48 ER - TY - JOUR AU - McDermott, C. AU - Haddabi, A. AU - Akagi, H. AU - Selby, M. AU - Cox, D. AU - Lewith, G. PY - 2014 DA - 2014// TI - What is the current NHS service provision for patients severely affected by chronic fatigue syndrome/myalgic encephalomyelitis? A national scoping exercise JO - BMJ Open VL - 4 UR - https://doi.org/10.1136/bmjopen-2014-005083 DO - 10.1136/bmjopen-2014-005083 ID - McDermott2014 ER - TY - JOUR AU - Bhui, K. S. AU - Dinos, S. AU - Ashby, D. AU - Nazroo, J. AU - Wessely, S. AU - White, P. D. PY - 2011 DA - 2011// TI - Chronic fatigue syndrome in an ethnically diverse population: the influence of psychosocial adversity and physical inactivity JO - BMC Med VL - 9 UR - https://doi.org/10.1186/1741-7015-9-26 DO - 10.1186/1741-7015-9-26 ID - Bhui2011 ER - TY - STD TI - Dinos S, Khoshaba B, Ashby D, White PD, Nazroo J, Wessely S, et al. A systematic review of chronic fatigue, its syndromes and ethnicity: prevalence, severity, co-morbidity and coping. Int J Epidemiol. 2009;38(6):1554–70. ID - ref51 ER - TY - STD TI - Hannon K, Peters S, Fisher L, Riste L, Wearden A, Lovell K, et al. Developing resources to support the diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME) in primary care: a qualitative study. BMC Fam Pract. 2012;13:93. ID - ref52 ER - TY - JOUR AU - Chew-Graham, C. AU - Dowrick, C. AU - Wearden, A. AU - Richardson, V. AU - Peters, S. PY - 2010 DA - 2010// TI - Making the diagnosis of Chronic Fatigue Syndrome/Myalgic Encephalitis in primary care: a qualitative study JO - BMC Fam Pract VL - 11 UR - https://doi.org/10.1186/1471-2296-11-16 DO - 10.1186/1471-2296-11-16 ID - Chew-Graham2010 ER - TY - JOUR AU - Tummers, M. AU - Lucassen, P. L. AU - Wiborg, J. F. AU - Bleijenberg, G. PY - 2013 DA - 2013// TI - The challenge of diagnosing CFS in primary care JO - Int J Clin Pract VL - 67 UR - https://doi.org/10.1111/ijcp.12139 DO - 10.1111/ijcp.12139 ID - Tummers2013 ER - TY - STD TI - Bayliss K, Goodall M, Chisholm A, Fordham B, Chew-Graham C, Riste L, et al. Overcoming the barriers to the diagnosis and management of chronic fatigue syndrome/ME in primary care: a meta synthesis of qualitative studies. BMC Fam Pract. 2014;15:44. ID - ref55 ER - TY - STD TI - Bayliss K, Riste L, Band R, Peters S, Wearden A, Lovell K, et al. Implementing resources to support the diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in primary care: A qualitative study. BMC Fam Pract. 2016;17(1):66. ID - ref56 ER - TY - JOUR AU - Stenhoff, A. L. AU - Sadreddini, S. AU - Peters, S. AU - Wearden, A. PY - 2015 DA - 2015// TI - Understanding medical students' views of chronic fatigue syndrome: a qualitative study JO - J Health Psychol VL - 20 UR - https://doi.org/10.1177/1359105313501534 DO - 10.1177/1359105313501534 ID - Stenhoff2015 ER - TY - STD TI - Tobback E, Mariman A, Heytens S, Declercq T, Bouwen A, Spooren D, et al. A multidisciplinary network for the care of abnormal fatigue and chronic fatigue syndrome in the provinces of East and West Flanders in Belgium. Acta Clin Belg. 2014;69(5):327–34. ID - ref58 ER - TY - JOUR AU - Carlsen, B. PY - 2003 DA - 2003// TI - Professional support of self-help groups: a support group project for Chronic Fatigue Syndrome patients JO - Br J Guid Couns VL - 31 UR - https://doi.org/10.1080/0306988031000147884 DO - 10.1080/0306988031000147884 ID - Carlsen2003 ER - TY - JOUR AU - McDermott, C. AU - Richards, S. AU - Ankers, S. AU - Selby, M. AU - Harmer, J. AU - Moran, C. PY - 2004 DA - 2004// TI - An evaluation of a chronic fatigue lifestyle management programme focusing on the outcome of return to work or training JO - Br J Occup Ther VL - 67 UR - https://doi.org/10.1177/030802260406700606 DO - 10.1177/030802260406700606 ID - McDermott2004 ER - TY - STD TI - Clark LV, McCrone P, Ridge D, Cheshire A, Vergara-Williamson M, Pesola F, et al. Graded Exercise Therapy Guided Self-Help Trial for Patients with Chronic Fatigue Syndrome (GETSET): Protocol for a Randomized Controlled Trial and Interview Study. JMIR Res Protoc. 2016;5(2):e70. ID - ref61 ER -