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Table 2 Comparison of data obtained from community health workers (CHW) and from researchers (RES) and the concordance (Kappa statistic) of 28 different variables from the data collection instrument on people with disabilities. (Missing -Lost Data; k – Kappa value)

From: Reliability of information on people with disabilities gathered by community health workers in highly consanguineous communities of Northeastern Brazil

Variables and Categorization CHW RES k Variables and Categorization CHW RES k
N = 106 N = 106 N = 106 N = 106
n % n % n % n %
1 1 - Female 48 45.3 54 50.9 0.95 17 0 – Not until 18 years old 77 72.6 84 79.2 0.39
2 - Male 39 36.8 48 45.3 1 - Yes. up to 18 years old 22 20.8 20 18.9
Missing (gender) 19 17.9 4 3.8 MISSING (manifests in childhood) 7 6.6 2 1.9
2 1 - Illiterate 59 55.7 66 62.3 0.69 18 0 – Not between 18 and 49 74 69.8 82 77.4 0.51
2 - Literate 33 31.1 38 35.8 1 - Yes. between 18 and 49 23 21.7 22 20.8
Missing (schooling) 14 13.2 2 1.9 MISSING (adulthood) 9 8.5 2 1.9
3 1 – Does not work 92 86.8 93 87.7 0.36 19 0 - Not after 50 years 81 76.4 83 78.3 0.61
2- Works 9 8.5 10 9.4 1 - Yes. after 50 years 17 16 21 19.8
Missing (occupation) 5 4.7 3 2.8 MISSING (aging) 7 6.6 2 1.9
4 1 – Does not receive pension 31 29.2 55 51.9 0.52 20 0 - Blank 87 82.1 87 82.1 0.48
2 – Receives pension 42 39.6 44 41.5 1 - See little from childhood 2 1.9 3 2.8
Missing (retirement) 33 31.1 7 6.6 2 - Blind since birth 2 1.9 0 0
5 1 – Does not receive benefit 27 25.5 47 44.3 0.62 3 - Became blind 5 4.7 6 5.7
2 - Receives benefit 54 50.9 43 40.6 4 - Lost his sight to blindness 3 2.8 8 7.5
Missing (benefit) 25 23.6 16 15.1 MISSING (visual impairment) 7 6.6 2 1.9
6 1 - Married 31 29.2 32 30.2 0.69 21 0 - Blank 86 81.1 87 82.1 0.65
2 - Single 56 52.8 70 66 1 - Unilateral vision loss 8 7.5 10 9.4
Missing (marital status) 19 17.9 4 3.8 2 - Bilateral vision loss 3 2.8 6 5.7
7 1 - Does not have children 55 51.9 58 54.7 0.87 MISSING (laterality) 8 7.5 3 2.8
2 – Has children 43 40.6 46 43.4 22 0 - Blank 87 82.1 87 82.1 0.66
Missing (children) 8 7.5 2 1.9 1 - There is no report 2 1.9 6 5.7
8 1 - Parents not related 66 62.3 71 67 0.73 2 - Yes. there is a report 8 7.5 9 8.5
2 – Parents related 20 18.9 26 28.5 MISSING (ophthalmologist report) 9 8.5 4 3.8
Missing (kinship) 20 18.9 9 8.5 23 0 - Blank 86 81.1 95 89.6 0.44
9 0 - Outbred 61 57.5 71 67 0.55 1 - Retinitis pigmentary 1 0.9 0 0
1- Uncle/Nephew 1 0.9 0 0 2- Optic nerve atrophy 0 0 1 0.9
2 – Double first Cousins 3 2.8 1 0.9 3 - Glaucoma 2 1.9 3 2.8
3 - Cousins 1st Degree 13 12.3 13 12.3 4 - Other 9 8.5 2 1.9
4 - Cousins 2nd Degree 5 4.7 7 6.6 MISSING (diagnosis) 8 7.5 5 4.7
5 - Cousins 3rd Degree 3 2.8 1 0.9 24 0 - Blank 92 86.8 92 86.8 0.59
6 – More distant 12 11.3 11 10.4 1 – Has been deaf since childhood 1 0.9 3 2.8
Missing (degree of kinship) 8 7.5 2 1.9 2 - Deaf and dumb 2 1.9 0 0
10 0 - There is no visual impairment 88 83 88 83 0.7 3 – Progressive loss of hearing 8 7.5 8 7.5
1 – There is visual impairment 13 12.3 18 17 4 - Was losing hearing 1 0.9 2 1.9
Missing (visual disabilities) 5 4.7 0 0 MISSING (hearing loss) 2 1.9 1 0.9
11 0 - There is no hearing deficiency 93 87.7 93 87.7 0.77 25 0 - Blank 92 86.8 92 86.8 0.87
1 - Yes. hearing 12 11.3 13 12.3 1 - Unilateral hearing loss 3 2.8 3 2.8
Missing (hearing disabilities) 1 0.9 0 0 2 - Bilateral hearing loss 5 4.7 7 6.6
12 0 – There is no physical disability 49 46.2 50 47.2 0.81 MISSING (laterality) 6 5.7 4 3.8
1 – Yes. physical disability 49 46.2 55 51.9 26 0 - Blank 92 86.8 92 86.8 0.89
Missing (physical disability) 8 7.5 1 0.9 1 - Did not have audiometry 2 1.9 6 5.7
13 0 - There is no intellectual deficiency 66 62.3 69 65.1 0.85 2 – Yes. did audiometry 2 1.9 4 3.8
1 - Yes. intellectual deficiency 35 33 37 34.9 MISSING (speech therapy) 10 9.4 4 3.8
Missing (intellectual deficiency) 5 4.7 0 0 27 0 - Blank 94 88.7 99 93.4 1.00
14 0 – Blank 67 63.2 67 63.2 0.89 1- Deafness light degree 0 0 0 0
1 – Intellectual deficiency 26 24.5 31 29.2 2 - Moderate deafness 0 0 0 0
2 - T. Psychiatric 4 3.8 2 1.9 3 - Severe deafness 1 0.9 2 1.9
3 - Psychiatric and intellectual 2 1.8 2 1.9 4 - Deafness severe degree 0 0 1 0.9
Missing (association) 7 6.6 4 3.8 MISSING (degree of hearing loss) 11 10.4 4 3.8
15 0- Blank 63 59.4 67 63.2 0.43 28 0 - Blank 94 88.7 99 93.4 a
1 – There is no Down syndrome 13 12.3 9 8.5 1 - Sensorineural loss 0 0 1 0.9
2 - Yes. Down syndrome 1 0.9 3 2.8 2 - Conductive or mixed loss 0 0 1 0.9
Missing (Down syndrome) 29 27.4 27 25.5 MISSING 12 11.3 5 4.7
16 0 – It is not congenital 61 57.5 62 58.5 0.68  
1 - Yes. it is congenital 38 35.8 42   
  1. p<0.01 for all cases
  2. a It was not possible to calculate the value of Kappa