Table 1 Instruments of the study protocol

Dementia stage

Global Deterioration Scale (GDS)

Cognition

Brief Cognitive Rating Scale (BCRS)

Mini Mental Status Examination (MMSE)

Clock-drawing Test

Functioning

Functional Assessment Staging Test (FAST)

KATZ Index of Independence in Activities of Daily Living

Mobility

Timed Up and Go Test

Nutrition

Mini Nutritional Assessment (MNA, short form)

Pain

Visual Analog Scale for Pain (VAS)

Pain Assessment in Advanced dementia (PAINAD)

Behaviour

Behavioural Pathology in Alzheimer’s disease Frequency

Weighted Scale (BEHAVE-AD-FS)

Empirical Behavioural Pathology in Alzheimer’s disease Rating

Scale (E-BEHAVE-AD)

Quality of Life

Quality of Life in Alzheimer’s disease Scale (QOL-AD participant version)

Sociodemographic data

Age, sex, date of institutionalization, nationality

Medication

Type and dosage

Dental status

Prosthesis (yes/no), other

Number of falls in the last 6 months

Chart Review

Number of hospital stays

Chart Review

Needs Assessment

Focus groups and qualitative interviews^a

Person-Centred Care

Person-Centred Care Assessment Tool (P-Cat)

Burden

Professional Care Team Burden Scale (PCTB)

Sociodemographic data

Age, sex, occupational group

Needs Assessment

Focus groups and qualitative interviews^a

Sociodemographic data

Age, sex, relationship link to resident

Number of Visits

Daily, Every 2 or 3 days, once per week/month, other

Quality of Life

Quality of Life in Alzheimer’s disease Scale (QOL-AD family version)

Needs Assessment

Focus groups and qualitative interviews^a

Organisational Category

A: Federal State, Municipality, Church & private

CZ: Municipality, For-profit, non-profit

Size of Institution

Number of organizational units, employees, rooms and residents

Room facilities

various listed facilities

Social Activities

Number per month, duration per unit, number of participants

Care Concept

Name or description of the care concept