Skip to main content

Table 3 Survey participants’ perceptions about what information should be in a practice guideline and in what stages of guideline development they should participate

From: Understanding optimal approaches to patient and caregiver engagement in the development of cancer practice guidelines: a mixed methods study

Importance of Information in Practice Guidelines (n = 21) Frequency
Development Stage Is it important to include the following in a practice guideline report? Yes Maybe No
 Topic selection Information regarding how the practice guideline topic was selected 10 (50.0%) 7 (35.0%) 3 (15.0%)
 Guideline development group Information about the doctors, nurses and researchers who were part of the practice guideline development group 10 (50.0%) 4 (20.0%) 6 (30.0%)
 Literature review Information on the quality of the research that was reviewed and considered 17 (80.9%) 1 (4.8%) 3 (14.3%)
 Creating a draft document Research that supports the various recommendation options considered in the draft practice guideline document 18 (85.7%) 0 (0.0%) 3 (14.3%)
Information about benefits and harms of the treatment options considered 20 (95.2%) 0 (0.0%) 1 (4.8%)
 Internal and external review Information about who was involved in the review of the draft practice guideline document 11 (52.4%) 4 (19.0%) 6 (28.6%)
 Creating a final document A summary of how the practice guideline development group made their decisions and reached their final recommendations 14 (66.7%) 5 (23.8%) 2 (9.5%)
Participation in Stages of Practice Guideline Development (n = 17)a Frequency
Development Stage Is it important for patients to participate in the following stages of practice guideline development? Yes Maybe No
 Topic selection The selection of the practice guideline topic 12 (70.6%) 4 (23.5%) 1 (5.9%)
 Literature review The collection of research to inform the practice guideline topic 8 (47.1%) 6 (35.3%) 3 (17.6%)
 Creating a draft document The development of a practice guideline draft document and its recommendations 7 (41.2%) 6 (35.3%) 4 (23.5%)
 Internal and external review The review of a draft practice guideline document and its recommendations 10 (58.8%) 5 (29.4%) 2 (11.8%)
 Creating a final document Making changes to a practice guideline draft document based on feedback from the expert review 13 (76.5%) 3 (17.6%) 1 (5.9%)
The creation of a patient/survivor/caregiver version of the final practice guideline document and its recommendations 16 (94.1%) 1 (5.9%) 0 (0.0%)
  1. aFour survey respondents indicated that they did not think it is important for patients/ survivors/ caregivers to participate in practice guideline development and therefore did not respond to the “Participation in the Various Stages of Practice Guideline Development” questions above