Skip to main content

Table 2 Survey participants’ agreement ratings towards participating in practice guideline development, anticipated impacts of participating, and methods of participating (n = 21)

From: Understanding optimal approaches to patient and caregiver engagement in the development of cancer practice guidelines: a mixed methods study

Item Meana SD
Participating
 I think it is important for me, as a patient/survivor/caregiver, to be involved in practice guideline development. 3.70 1.22
 I am interested in participating in practice guideline development. 3.19 1.60
 I would want to be provided with training to learn more about practice guidelines as well as the development process, prior to participation. 3.45 1.32
Anticipated Impacts
 By participating in practice guideline development, patients/survivors/caregivers can incorporate their values and preferences into the practice guideline development process. 3.48 1.36
 By participating in the practice guideline development process, patients/survivors/caregivers can make suggestions for improvements to the development process. 4.00 0.97
 By participating in the practice guideline development process, patients/survivors/caregivers may impact the quality of care patients receive. 4.10 1.05
 By participating in the practice guideline development process, patients/survivors/caregivers may impact access to care. 4.05 1.05
 By participating in the practice guideline development process, patients/survivors/caregivers may impact the number of available care choices/options. 3.90 1.07
 By participating in the practice guideline development process, patients/survivors/caregivers may promote information sharing regarding the disease and related treatment options. 4.14 0.79
 By participating in the practice guideline development process, patients/survivors/caregivers may gain valuable knowledge about options available for the treatment and management of cancer. 4.20 0.77
Methods of Participation
 Holding a separate meeting for patients/survivors/caregivers to seek their feedback and to incorporate their values and preferences in the practice guideline report 4.06 0.95
 Including patients/survivors/caregivers as members of the practice guideline development group, from start to finish 3.89 1.18
 Including patients/survivors/caregivers in the review of a draft version of the practice guideline document only 3.94 1.30
 Including patients/survivors/caregivers in communication and information sharing (e.g., participating in the distribution of the final practice guideline document, creating patient versions of practice guidelines) 3.94 1.06
  1. SD standard deviation
  2. a5-point scale (1 = strongly disagree, 5 = strongly agree)