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Table 1 Characteristics of participants

From: Understanding optimal approaches to patient and caregiver engagement in the development of cancer practice guidelines: a mixed methods study

Characteristic Workshop (Regional Cancer Program) Surveys Interviews (Provincial Cancer Guideline Program)
   Regional Provincial  
Total Number 12 13 8 8
Age (years)
 20–29 - - - -
 30–39 - - 1 (12.5%) -
 40-49 2 (16.7%) 1 (7.7%) 2 (25.0%) -
 50-59 3 (25.0%) 3 (23.1%) 3 (37.5%) 4 (50.0%)
 60–69 3 (25.0%) 5 (38.5%) 2 (25.0%) 2 (25.0%)
 70–79 3 (25.0%) 2 (15.4%) - 1 (12.5%)
 80 + 1 (8.3%) 1 (7.7%) - 1 (12.5%)
Sex
 Male 4 (33.3%) 2 (15.4%) 4 (50.0%) 5 (62.5%)
 Female 8 (66.7%) 10 (76.9%) 4 (50.0%) 3 (37.5%)
Highest education level
 Elementary School - - - -
 High School 2 (16.7%) 3 (25.0%) 1 (12.5%) -
 College Diploma/Degree 6 (50.0%) 6 (50.0%) 1 (12.5%) 1 (12.5%)
 Bachelor’s Degree 3 (25.0%) 2 (16.7%) 5 (62.5%) 2 (25.0%)
 Master’s Degree or Higher 1 (8.3%) 1 (8.3%) 1 (12.5%) 5 (62.5%)
Current Cancer Experience (multiple answers possible)
 Patient: diagnosed and/or active treatment 1 1 2 1
 Survivor: follow-up or survivorship care 9 11 3 6
 Caregiver 3 - 4 2
 Community Organization Member 4 1 - 3
Type of Cancer a (multiple answers possible)
 Breast 5 10 1 1
 Colorectal 1 1 1 -
 Prostate 4 1 - 3
 Other -- - 2 3
  1. aNote: This question only applied to participants who identified as patients and/or survivors