Table 1 Primary and secondary outcomes, data sources, and timeline for measurements
Outcomes | Data sources | Measurement/month |
|---|---|---|
Resource utilisation | ||
 1. Number of contacts | The Hospital Business Intelligence Register, Central Denmark Region | 0–18 |
Quality of care | ||
 2. Well-being | WHO-Five Well-being Index (WHO-5) | 0, 18 |
 3. General health | Item from The Short Form Health Survey (SF-36) | 0, 18 |
 4. Mortality | The Hospital Business Intelligence Register, Central Denmark Region | 0–18 |
 5. Number of seizures | Item from the epilepsy questionnaire, Central Denmark Region | 0, 18 |
 6. Treatment side effects | Item from the epilepsy questionnaire, Central Denmark Region | 0, 18 |
Patient perspective a | ||
 7. Health literacy | The Health Literacy Questionnaire (HLQ) sub scale 4, 6 and 9 | 0, 18 |
 8. Self-efficacy | General Self-Efficacy scale (GSE) | 0, 18 |
 9. Patient activation | Items from Patient Activation Measure (PAM) | 0, 18 |
 10. Confidence, safety, and satisfaction | Items from a PREM questionnaire, Danish Cancer Society | 0, 18 |