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Table 1 Overview of the 51 items divided in main areas and illustrating the corresponding questions asked about the acute and rehabilitation departments (version 1 questionnaire)

From: The family experiences of in-hospital care questionnaire in severe traumatic brain injury (FECQ-TBI): a validation study

  Items Rehab department items Acute department items
   PEPC
Itemc
Missing
n (%)b
Meana SD Missing
n (%)b
Meana SD
1 One doctor mainly responsible O 4 (3.5) 3.86 1.11 2 (1.6) 3.39e 1.25
2 Fixed group nurses O 4 (3.5) 3.92 0.98 2 (1.6) 3.85 0.99
3 Staff collaboration O 4 (3.5) 3.92 0.96 4 (3.3) 4.21 0.83
4 Care/rehabilitation well planned O 4 (3.5) 3.93 1.00 3 (2.5) 4.19 0.95
5 Thoughtfulness, care for the patient Ns/Ds 3 (2.7) 4.20 0.88 3 (2.5) 4.44 0.71
6 Seemed professionally competent Nsd/Ds 3 (2.7) 4.17 0.94 2 (1.6) 4.49 0.72
7 Information tests, examinations I 5 (4.4) 3.61e 1.10 2 (1.6) 4.09 0.98
8 Took account of family situation Ns 3 (2.7) 3.79 1.02 2 (1.6) 3.94 1.02
9 Thoughtfulness, care for relative Ns/Ds 4 (3.5) 3.55 1.19 1 (0.9) 3.93 1.03
10 Interested in your opinions Ns/Ds 3 (2.7) 3.47 1.17 1 (0.9) 3.72 1.15
11 Gave understandable information Ns/Ds 4 (3.5) 3.89 1.05 1 (0.9) 4.17 0.93
12 Fixed group of other therapists - 4 (3.5) 4.10 0.93    
13 Felt assure regarding necessary care - 4 (3.5) 4.02 1.13    
14 Explanation purpose of rehabilitation - 3 (2.7) 3.67 1.11    
15 Staff committed themselves to patient - 3 (2.7) 4.05 0.95    
16 Had a fixed contact (rehabilitation) - 3 (2.7) 3.31 1.15    
17 Provided assistance with the patient Ns 6 (5.3) 3.90 1.02    
18 Provided coordinated information - 4 (3.5) 3.73 1.07    
19 Received information about rights - 3 (2.7) 2.82 1.25    
20 Informed about what you could contribute with at the hospital - 4 (3.5) 3.16 1.24    
  Discharge period
1  Information period after discharge DI 7 (5.7) 3.17 1.30    
2  Felt confident managing follow-up DI 9 (7.4) 3.24 1.21    
3  Informed about what you could do in the event of problems after discharge DI 9 (7.4) 2.81 1.38    
4  Informed about short/long term consequences of head injuries - 6 (4.9) 2.99 1.36    
5  Consulted during planning dischargee - 31 (25.4) 3.51 1.37    
6  Necessary arrangements for further rehabilitatione - 30 (24.6) 3.09 1.26    
  Hospital facilities
1  Cleanliness HF 6 (5.3) 4.32 0.85    
2  Bathroom/shower/toilet facilities HF 5 (4.4) 4.14 0.90    
3  Peace and quiet patient’s room HF 5 (4.4) 4.38 0.75    
4  Meals for the patient - 8 (7.0) 4.23 0.93    
5  Rest room/accommodation relative(s) - 26 (23.0) 3.08 1.44    
6  Meals for the relative(s) - 22 (19.5) 3.60 1.36    
7  Activity provisions for the patiente HFd 8 (7.0) 3.85 1.13    
  Overall single questions about the time in hospital as a whole
1  Overall satisfaction with care, treatment and rehabilitation at the hospital PEPC-S 2 (1.6) 4.36 0.82    
2  Overall satisfaction with the way you were treated as a relative PEPC-S 2 (1.6) 4.23 0.90    
3  Do you believe that the patient in any way received the wrong treatment?f PEPC-S 2 (1.6) 4.43 0.99    
4  Were you angry, distressed, or disappointed with the staff?f PEPC-S 2 (1.6) 3.78 1.32    
5  Any adverse incidents in connection with transfer between departmentsf - 2 (1.6) 3.68 1.43    
6  Were financial needs taken care off? - 3 (2.5) 2.29 1.43    
7  Were involved children taken care off (n = 53 had children involved) _ 14 (26.4) 3.21 1.28    
  1. aItems and scales are scored 1–5 where 5 is the best experience
  2. bPercentages of missing items are for the acute phase, discharge and single questions calculated from the 122 family members who completed the questionnaire. Percentages for the rehabilitation phase are calculated from the 113 family members who completed questions about the rehabilitation unit
  3. cParent experience of paediatric care (PEPC) scales: Ns = Nursing services, Ds = Doctor services, O = Organization, I = Information–examinations and tests, DI = Discharge information, HF = Hospital facilities, PEPC-S = single item in addition to the scales in the PEPC questionnaire. (−) = New items in the FECQ
  4. dItem removed from the final scale in the PEPC-questionnaire
  5. eItem removed from the final scale in the FECQ-TBI
  6. fScoring corresponds to scoring of other items: higher values represent better results