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Table 1 Overview of the 51 items divided in main areas and illustrating the corresponding questions asked about the acute and rehabilitation departments (version 1 questionnaire)

From: The family experiences of in-hospital care questionnaire in severe traumatic brain injury (FECQ-TBI): a validation study

 

Items

Rehab department items

Acute department items

  

PEPC

Itemc

Missing

n (%)b

Meana

SD

Missing

n (%)b

Meana

SD

1

One doctor mainly responsible

O

4 (3.5)

3.86

1.11

2 (1.6)

3.39e

1.25

2

Fixed group nurses

O

4 (3.5)

3.92

0.98

2 (1.6)

3.85

0.99

3

Staff collaboration

O

4 (3.5)

3.92

0.96

4 (3.3)

4.21

0.83

4

Care/rehabilitation well planned

O

4 (3.5)

3.93

1.00

3 (2.5)

4.19

0.95

5

Thoughtfulness, care for the patient

Ns/Ds

3 (2.7)

4.20

0.88

3 (2.5)

4.44

0.71

6

Seemed professionally competent

Nsd/Ds

3 (2.7)

4.17

0.94

2 (1.6)

4.49

0.72

7

Information tests, examinations

I

5 (4.4)

3.61e

1.10

2 (1.6)

4.09

0.98

8

Took account of family situation

Ns

3 (2.7)

3.79

1.02

2 (1.6)

3.94

1.02

9

Thoughtfulness, care for relative

Ns/Ds

4 (3.5)

3.55

1.19

1 (0.9)

3.93

1.03

10

Interested in your opinions

Ns/Ds

3 (2.7)

3.47

1.17

1 (0.9)

3.72

1.15

11

Gave understandable information

Ns/Ds

4 (3.5)

3.89

1.05

1 (0.9)

4.17

0.93

12

Fixed group of other therapists

-

4 (3.5)

4.10

0.93

   

13

Felt assure regarding necessary care

-

4 (3.5)

4.02

1.13

   

14

Explanation purpose of rehabilitation

-

3 (2.7)

3.67

1.11

   

15

Staff committed themselves to patient

-

3 (2.7)

4.05

0.95

   

16

Had a fixed contact (rehabilitation)

-

3 (2.7)

3.31

1.15

   

17

Provided assistance with the patient

Ns

6 (5.3)

3.90

1.02

   

18

Provided coordinated information

-

4 (3.5)

3.73

1.07

   

19

Received information about rights

-

3 (2.7)

2.82

1.25

   

20

Informed about what you could contribute with at the hospital

-

4 (3.5)

3.16

1.24

   
 

Discharge period

1

 Information period after discharge

DI

7 (5.7)

3.17

1.30

   

2

 Felt confident managing follow-up

DI

9 (7.4)

3.24

1.21

   

3

 Informed about what you could do in the event of problems after discharge

DI

9 (7.4)

2.81

1.38

   

4

 Informed about short/long term consequences of head injuries

-

6 (4.9)

2.99

1.36

   

5

 Consulted during planning dischargee

-

31 (25.4)

3.51

1.37

   

6

 Necessary arrangements for further rehabilitatione

-

30 (24.6)

3.09

1.26

   
 

Hospital facilities

1

 Cleanliness

HF

6 (5.3)

4.32

0.85

   

2

 Bathroom/shower/toilet facilities

HF

5 (4.4)

4.14

0.90

   

3

 Peace and quiet patient’s room

HF

5 (4.4)

4.38

0.75

   

4

 Meals for the patient

-

8 (7.0)

4.23

0.93

   

5

 Rest room/accommodation relative(s)

-

26 (23.0)

3.08

1.44

   

6

 Meals for the relative(s)

-

22 (19.5)

3.60

1.36

   

7

 Activity provisions for the patiente

HFd

8 (7.0)

3.85

1.13

   
 

Overall single questions about the time in hospital as a whole

1

 Overall satisfaction with care, treatment and rehabilitation at the hospital

PEPC-S

2 (1.6)

4.36

0.82

   

2

 Overall satisfaction with the way you were treated as a relative

PEPC-S

2 (1.6)

4.23

0.90

   

3

 Do you believe that the patient in any way received the wrong treatment?f

PEPC-S

2 (1.6)

4.43

0.99

   

4

 Were you angry, distressed, or disappointed with the staff?f

PEPC-S

2 (1.6)

3.78

1.32

   

5

 Any adverse incidents in connection with transfer between departmentsf

-

2 (1.6)

3.68

1.43

   

6

 Were financial needs taken care off?

-

3 (2.5)

2.29

1.43

   

7

 Were involved children taken care off (n = 53 had children involved)

_

14 (26.4)

3.21

1.28

   
  1. aItems and scales are scored 1–5 where 5 is the best experience
  2. bPercentages of missing items are for the acute phase, discharge and single questions calculated from the 122 family members who completed the questionnaire. Percentages for the rehabilitation phase are calculated from the 113 family members who completed questions about the rehabilitation unit
  3. cParent experience of paediatric care (PEPC) scales: Ns = Nursing services, Ds = Doctor services, O = Organization, I = Information–examinations and tests, DI = Discharge information, HF = Hospital facilities, PEPC-S = single item in addition to the scales in the PEPC questionnaire. (−) = New items in the FECQ
  4. dItem removed from the final scale in the PEPC-questionnaire
  5. eItem removed from the final scale in the FECQ-TBI
  6. fScoring corresponds to scoring of other items: higher values represent better results