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Table 2 Measurement instruments

From: Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study

Measurement instruments

  

Variable

Measure

Assessed by

People with dementia

 Socio-demographics

Datasheeta

PwD

 Cognition

MMSE

PwD

 Service use

Checklist

PwD/CG

 Personal and social resources

RUD

CG

 Health-related quality of life

EQ-5D-5L

PwD

 Quality of life of PwD

DEMQOL-U

PwD

DEMQOL-U-Proxy

CG

QOL-AD

PwD, CG

EQ-5D-5L

CG

 Quality of relationship

PAI

PwD

 Capability

ICECAP-O

PwD

 (un)met needs

CANE

PwD, CG, In

 Neuropsychiatric symptoms

NPI-Q

CG

 Severity of dementia

CDR

In

 Comorbidity

Charlson Index

In

 Activities of daily life

IADL

CG

PSMS

CG

Informal carers

 Social isolation

LSNS-6

CG

 Quality of relationship

PAI

CG

 Quality of life

CarerQol-7D

CG

 Health related quality of life

EQ-5D-5L

CG

 Anxiety and depression

HADS

CG

 Perseverance time

Single question

CG

 Stress

RSS

CG

 Capability

ICECAP-O

CG

 Control

Locus of controla

CG

 Sense of coherence

SOC-13

CG

 Personal and social resources

RUD

CG

  1. Pwd people with dementia, CG informal carers, In interviewer. Measures which are only assessed at baseline are marked with an a