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Table 4 A patient’s journey, in the context of late diagnosis/referral

From: Managing Matajoosh: determinants of first Nations’ cancer care decisions

Care trajectory Basis of treatment decision Challenges Maintaining connection with home and family
Refused care • Wanting to die at home • Formal and informal home care
• Pain control
• Forced hospitalization at end stage
• Less of an issue until end stage
Traveling for care • Connection to family
• Maintaining employment
• Access to medical transportation and financial support for appointments
• Living in hotels while on chemo
• Less of an issue until end stage if terminal
Relocating • Safety
• Better access
• Access to medical transportation and financial support for appointments
• Access to adequate accommodations
• Isolation from family
• Barriers to coming home