Table 4 Quality of life: impact on physical, social and occupation health
Quote no. | Quote |
|---|---|
Quality of life: Impact on emotional/mental health | |
1. | “..at least cancer has the decency of killing you after torture. Not build you up and attack again…Also on antidepressants…” (P1) |
2. | “it takes over your life….always have constant fear of what’s next.” (P148) |
3. | “..impact on confidence is greatly affected..” (P8) |
4. | “This illness is so debilitating and embarrassing…” (P131) |
5. | “people don’t realise just how low you can get when having a flare up…it just drains you emotionally.” (P95) |
6. | “its been horrendously isolating….has precluded me from contemplating seeking a partner.” (P139) |
7. | “its horrible and upsetting and makes life a lot more difficult for the sufferer and sufferer’ family.” (P40) |
8. | “More could be done on the counselling side of things too, depression and anxiety can follow a flare up.” (P36) |
9. | “I find stress makes me flare up and feel that the nurses and GP's seem to be disregarding the help people need emotionally.” (P86) |
10. | “Fatigue, stress and anxiety all make the condition worse and are brought about by it but no strategies are ever offered by NHS staff.” (P155) |