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Table 2 ᅟDescription of interventions and outcomes

From: Designing and delivering facilitated storytelling interventions for chronic disease self-management: a scoping review

Author, Year, Country Session number, frequency and duration Session topic examples Tools, props, action orientation Outcomes Measurement tools Method of data analysis
Comellas (2010) [25], United States 5 sessions Diagnosis, self-management, goal setting, sexual health Goal setting Physical and nutrition self-care activities and overall well-being. Surveys (SDSCA measure), World Health Organization 5-item Well-Being Scale, Comparisons were made from baseline data to evaluate change from pre to post intervention
Crogan, Evans & Bendel (2008)a, [24] United States 12 weekly sessions, 1.5 h long Diagnosis, living with disease, loss of control, relationships, death N/A Pain McGill Pain Questionnaire Repeated measures analysis of variance
Stress Index of Clinical Stress, Cantril’s Ladder
Self-efficacy Physical Self-Efficacy Scale
Mood Satisfaction with Life Scale, Brief Depression Rating Scale
Coping Index of Clinical Stress, Cantril’s Ladder
Satisfaction with Life Satisfaction with Life Scale, Brief Depression Rating Scale
Evans, Crogan & Bendel (2008)a, [37] United States 12 weekly sessions, 1.5 h long Coping, control issues, life, hope, desires, fear, relationships N/A Healing for clients and their relationships; finding meaning in & transforming suffering; acceptance of life journey, including death Index of Clinical Stress Exit Interviews, Facilitator debriefing questionnaires
Cantril’s Ladder
McGill Pain Questionnaire
Satisfaction With Life Scale
Brief Depression Rating Scale
Other qualitative data Exit Interview
Ability of the nurse facilitator to effectively implement storytelling techniques and differentiate storytelling group from the control group Facilitator Debriefing Questionnaire
Greenhalgh et al. (2011a)b, [12] United Kingdom 72 biweekly sessions, 2 h long Feeding the family, medication, dealing with doctors Pills, food samples Primary outcome (a composite of blood pressure, smoking status, lipid ratio, atrial fibrillation, and HbA1c) UKPDS (UK Prospective Diabetes Study) coronary risk score Statistical comparison
Secondary outcomes included attendance Observation
Secondary outcomes included HbA1c Blood test
Secondary outcomes included well-being Psychometric questionnaire
Secondary outcomes included confidence in managing and living with illness Patient Enablement Instrument (PEI)
Greenhalgh, Collard & Begum (2005b), [26] United Kingdom Unknown Diagnosis, diet, exercise, check-ups, medications, shopping, feelings Pills, insulin, glucose meters, letters, activities (eg. self-monitoring, cooking, trying exercises, looking at shoes) Mean Glucose Concentration Blood test Constant comparative method
Greenhalgh et al. (2011b), [15] United Kingdom 13 biweekly sessions, 2 h long Diagnosis, weight loss, diet, exercise, medication Food samples, glucose meters, artifacts (eg. hospital letters, tablets), exercising, group trips Stories told How stories inform program design Ritchie & Spencer’s ‘framework’ method Narrative analysis Interpretive analysis Ritchie & Spencer ‘Framework’ (2003), Narrative analysis and Interpretive analysis using Bakhtin’s (1981) dialogical approach and Riessman’s (2008) notion of storytelling as performance
Koch & Kralik (2001), [28] Australia 10 sessions (40 h of contact) Sex, incontinence, life with disease Creating, implementing, and evaluating plans of action Cycles of look, think, act in PAR approach Observation By research team concurrently with data generation
Piana (2010), [20] Italy 9 days (2 h autobiographical approach, 1.5 h diabetes self-management education) Diagnosis, challenges of living with diabetes, relationship with food, relationship with one’s own body, with others and self care. Writing, communication through songs, poems, readings, images, drawings and creative workshops Stress reduction, change in self-perception, perception of relationships with others and with the disease itself Questionnaires with open ended questions Qualitative analysis on the open-ended questions
Sitvast (2013) [27], the Netherlands 8 weekly sessions Family, friends, pets, hobbies, independence, jobs Photos, goal setting and planning activities Moral Learning Self-Motivation Action Framework of methodological steps Structural analysis on a meta level grounded in the tradition of interpretivism and ethnography
Struthers et al. (2003) [17], United States 12 sessions Diabetes (perceptions, facts, prevention), nutrition (basics, preparation traditional foods), healthy lifestyles (physical, emotional, family, community) Flip charts, visual aids, symbolic item (eg. feather or rock) Individual anthropometrics Participant experience Pretest (introductory session) & post-test (final session) for individual anthropometrics Clinic health charts also reviewed, Interviews Comparative, Phenomenological, Verification from participants
  1. (a or b) same intervention