From: Patient information and emotional needs across the hip osteoarthritis continuum: a qualitative study
Phase | Key questions | Typical quotes |
---|---|---|
1. Symptom debut & diagnosis | Something is wrong, what is this hip pain? | I had noticed this pain in my hips that persisted over a period of time. Then I told my GP about this pain, and he referred me for an X-ray (P3). |
2. Symptoms increasingly interfere with physical functioning | My hip really bothers me, what can I do? | I haven’t taken any painkillers. I don’t want to […] I believe that if you take painkillers you’ll become worse and get more pain in the end (P5) |
3. Symptoms significantly decreases quality of life | I can´t stand the pain, is it time for surgery? | I have to crawl up the stairs using the arms to push myself upwards (P8) |
4. Orthopaedic evaluation and surgical decision-making | Will a hip replacement help me with my problems? | I have long been aware that I would need to replace the hip at some point, but I wanted to wait as long as possible (P3). |
4a. The timing of surgery | The doctor tells me that the timing is not right for me, what now? | The doctor said that it (the joint) was worn out, but not enough to allow surgery. Then I just had to wait until it was bad enough (P6). |
4b. In the queue | I am waiting for surgery, what should I do? | I have done exercises three times a week the last 3–4 months to prepare for the operation. It is important to strengthen the muscles to become best prepared for the period after surgery (P4) |
4c. Not medically fit, or don’t prefer surgery | What are my options if I am not receiving surgery? | I have come to a point to wonder whether surgery is a wise thing to do - I’m not so happy about that either you know (P9) |
5. The perioperative period | What will happen at the hospital? | They were very good at informing me about what to expect during the hospital stay- it was excellent information! (P10). |
6. The recovery period | What can I expect after having surgery? | I was told that the prosthesis isn’t worth anything without the muscles- it must be rebuilt… I therefore chose to take part of all available training at the rehab centre (P12). |