Table 4 Subthemes with illustrative quotes from the what patients want to know theme
Subtheme | Illustrative quote | Participant & group number |
|---|---|---|
My treatment choices | …it [patient guideline] gives you the knowledge then it gives you the ammunition to question why you’re getting the treatment or why you’re not getting treatment. | P1, G5 |
Harms and lifestyle | …the doctor wanted to give me an operation…He didn’t tell me about the consequences right of what he was going to do. | P2, G5 |
What to expect - causes symptoms and outcomes | …we and our families are living with this illness, we should know what to expect… | P2, G2 |
Self-management | How to help yourself…Help yourself, yes, I think that’s the top priority [for patient guidelines]... | P3, G2 |
Signposting | Where you should go. It’s not a case of being spoon-fed because we’re all adults but if you’re suffering from this or have the signs of this, this is where you can go for help? We need to know that. | P6, G2 |