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Table 8 From the Perspective of ‘Non-Primary Care Providers’, what would help to increase integration with other systems?

From: Integrating care for individuals with FASD: results from a multi-stakeholder symposium

Information Integration/Sharing: there is a need for coordinated and open communication between all stakeholders(e.g., case worker, family, doctors & mental health workers etc..) Privacy is a huge barrier. Need to re-evaluate privacy policies and eliminate barriers for optimal care while maintaining human rights. Is there a better way to facilitate access, sharing of information? Sharing information needs to have an umbrella release, (e.g., automatic sharing of information between all parties and to make the process faster and efficient).
Implement a Specialist “medical home”- where primary care providers are integrated with the medical home team. Could use nurse practitioners as a form of liaising with primary care.
Introduce a follow-up/outreach responsibility to primary caresystem serving vulnerable populations (FASD).
Provide training and consultation about FASD to physicians (E.g., similar to the FASD specialist roles within CFS and/or utilize existing coordinators in the five regions to facilitate trainings.
Increase primary care provider’s knowledgeof possible impairment associated with the specific disability and/or which resources to contact to request information.
Shared care model: consultation models/systems for primary care providers to access expertise of their colleagues at a specialist clinic/service. It would be part of the role of the specialist to have dedicated time in their job description to offer consultation.
Obtaining qualitative information regarding what prevents primary health care providers from making a referral for an FASD assessment.
Language - All talking the same language that’s understandable, communication, medical jargon is too much, shared language, very specific to the needs of the individual.
Increase diagnostic capacity. Do this by recruiting primary physicians who are interested in becoming diagnosticians in FASD.
FASD Medical Access Centre- This would be a physical space/clinic) that is flexible in approach to services and would be adapted to FASD behaviours/characteristics and other health needs.