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Table 3 ‘Mind the Gap’ scores of young people and parents by health condition

From: Characteristics of young people with long term conditions close to transfer to adult health services

 

Young people

 

Parents/carers

 
 

ASD

CP

Diabetes

 

ASD

CP

Diabetes

 
 

Median (IQR)

Median (IQR)

Median (IQR)

 

Median (IQR)

Median (IQR)

Median (IQR)

 

Ideal care

        

Physical environment

5.0 (4.4, 5.8)

5.2 (4.4, 6.0)

5.4 (4.6, 6.0)

 

6.0 (5.2, 6.5)

6.0 (5.0, 6.5)

5.8 (5.2, 6.5)

 

Healthcare personnel

5.9 (5.3, 6.6)

5.9 (5.3, 6.5)

6.0 (5.5, 6.5)

 

6.8 (6.3, 6.9)

6.5 (6.1, 6.8)

6.6 (6.0, 6.9)

 

Care processes

5.8 (4.8, 6.4)

5.8 (4.8, 6.6)

5.7 (4.6, 6.2)

 

7.0 (6.6, 7.0)

6.9 (6.4, 7.0)

6.6 (6.0, 6.9)

 

Current care

        

Physical environment

4.2 (3.4, 5.0)

4.0 (3.4, 5.0)

4.6 (3.8, 5.0)

 

3.8 (3.0, 4.8)

3.7 (2.7, 4.5)

4.2 (3.2, 5.0)

 

Healthcare personnel

5.1 (4.3, 5.7)

5.0 (4.1, 5.8)

5.6 (4.7, 6.1)

 

5.5 (4.4, 6.6)

4.6 (3.6, 5.5)

5.6 (4.6, 6.2)

 

Care processes

4.6 (3.4, 5.4)

4.4 (3.0, 5.6)

4.6 (4.0, 5.6)

 

4.6 (3.1, 5.8)

3.6 (2.4, 5.0)

5.1 (4.0, 5.9)

 

‘Gap’ score

   

p value1

   

p value1

Physical environment

0.8 (−0.2, 1.8)

1.0 (−0.2, 2.0)

0.8 (0.0, 1.8)

0.79

1.8 (0.5, 3.0)

2.0 (0.7 3.2)

1.4 (0.3, 2.7)

0.14

Healthcare personnel

0.6 (0.0, 1.5)

0.4 (0.0, 1.4)

0.4(−0.2, 1.1)

0.12

0.6 (0.0, 2.1)

1.6 (0.7, 2.8)

0.8 (0.1, 1.6)

<0.001

Care processes

1.0 (0.0, 1.8)

1.0 (0.0, 2.8)

0.6 (0.0, 1.4)

0.06

1.9 (0.6, 3.3)

3.0 (1.1, 4.1)

1.1 (0.3, 2.1)

<0.001

  1. 1Kruskal-Wallis test of differences in gap scores across long term health condition
  2. IQR Inter-quartile range
  3. ASD Autism Spectrum Disorder
  4. CP Cerebral Palsy