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Table 3 ‘Mind the Gap’ scores of young people and parents by health condition

From: Characteristics of young people with long term conditions close to transfer to adult health services

  Young people   Parents/carers  
  ASD CP Diabetes   ASD CP Diabetes  
  Median (IQR) Median (IQR) Median (IQR)   Median (IQR) Median (IQR) Median (IQR)  
Ideal care         
Physical environment 5.0 (4.4, 5.8) 5.2 (4.4, 6.0) 5.4 (4.6, 6.0)   6.0 (5.2, 6.5) 6.0 (5.0, 6.5) 5.8 (5.2, 6.5)  
Healthcare personnel 5.9 (5.3, 6.6) 5.9 (5.3, 6.5) 6.0 (5.5, 6.5)   6.8 (6.3, 6.9) 6.5 (6.1, 6.8) 6.6 (6.0, 6.9)  
Care processes 5.8 (4.8, 6.4) 5.8 (4.8, 6.6) 5.7 (4.6, 6.2)   7.0 (6.6, 7.0) 6.9 (6.4, 7.0) 6.6 (6.0, 6.9)  
Current care         
Physical environment 4.2 (3.4, 5.0) 4.0 (3.4, 5.0) 4.6 (3.8, 5.0)   3.8 (3.0, 4.8) 3.7 (2.7, 4.5) 4.2 (3.2, 5.0)  
Healthcare personnel 5.1 (4.3, 5.7) 5.0 (4.1, 5.8) 5.6 (4.7, 6.1)   5.5 (4.4, 6.6) 4.6 (3.6, 5.5) 5.6 (4.6, 6.2)  
Care processes 4.6 (3.4, 5.4) 4.4 (3.0, 5.6) 4.6 (4.0, 5.6)   4.6 (3.1, 5.8) 3.6 (2.4, 5.0) 5.1 (4.0, 5.9)  
‘Gap’ score     p value1     p value1
Physical environment 0.8 (−0.2, 1.8) 1.0 (−0.2, 2.0) 0.8 (0.0, 1.8) 0.79 1.8 (0.5, 3.0) 2.0 (0.7 3.2) 1.4 (0.3, 2.7) 0.14
Healthcare personnel 0.6 (0.0, 1.5) 0.4 (0.0, 1.4) 0.4(−0.2, 1.1) 0.12 0.6 (0.0, 2.1) 1.6 (0.7, 2.8) 0.8 (0.1, 1.6) <0.001
Care processes 1.0 (0.0, 1.8) 1.0 (0.0, 2.8) 0.6 (0.0, 1.4) 0.06 1.9 (0.6, 3.3) 3.0 (1.1, 4.1) 1.1 (0.3, 2.1) <0.001
  1. 1Kruskal-Wallis test of differences in gap scores across long term health condition
  2. IQR Inter-quartile range
  3. ASD Autism Spectrum Disorder
  4. CP Cerebral Palsy