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Table 2 Comparison between participants and population data of condition severity by health condition

From: Characteristics of young people with long term conditions close to transfer to adult health services

AUTISM SPECTRUM DISORDER
Questionnaire Participants Australian source  
Young person SDQ n Mean SD n Mean SD p value1
  Total score 116 17.6 6.1 29 18.4 5.6 0.47
  Emotional symptoms 116 4.8 2.5 29 4.5 3.0 0.68
  Conduct problems 116 3.0 2.2 29 2.8 1.7 0.47
  Hyperactivity 116 5.5 2.4 29 5.9 2.0 0.39
  Peer Problems 116 4.2 2.2 29 5.2 2.7 0.07
  Prosocial 116 6.5 2.1 29 7.0 2.0 0.23
  Participants SNAP source
Parent-reported SDQ n Mean SD n Mean SD p value1
  Total score 113 22.8 5.9 105 13.5 7.2 <0.001
  Emotional symptoms 113 6.3 2.4 105 2.9 2.4 <0.001
  Conduct problems 113 3.6 2.5 104 1.7 1.6 <0.001
  Hyperactivity 113 6.7 2.5 105 4.8 2.8 <0.001
  Peer Problems 113 6.2 2.2 105 4.1 3.1 <0.001
  Prosocial 113 5.1 2.3 104 6.0 2.4 0.01
  Participants SNAP source  
SRS n Mean SD n Mean SD p value1
  Total score 114 117.2 29.7 71 90.3 27.3 <0.001
CEREBRAL PALSY
Questionnaire Participantsa Regional samples: NECCPS & NICPRb  
GMFCS at age 5 years n (%) n (%) p value2
  I 25 (26) 95 (26)  
  II 42 (44) 159 (44)  
  III 16 (17) 59 (16)  
  IV 11 (11) 41 (11)  
  V 2 (2) 8 (2)  
  Total 96 (100) 362 (100) 0.99
DIABETES
Indicator Participants UK national datac p value3
  n Mean SD n Mean SD  
  HbA1c (mmol/mol) 150 72.5 18.6 11676 71.6 22.6 0.56
  Age at diagnosis (years) 150 9.5 3.8 11676 9.0 3.8 0.10
  1. 1Two sample t-test of difference in means between participants and population data
  2. SD Standard Deviation
  3. SDQ Strength and Difficulties Questionnaire
  4. SRS Social Responsiveness Scale
  5. SNAP Special Needs and Autism Project
  6. aData missing from one site
  7. bThose born in region, 1995–98, IQ > 50
  8. 2Chi-squared test of difference in GMFCS distribution between participants and population data
  9. GMFCS Gross Motor Function Classification System
  10. NECCPR North of England Collaborative Cerebral Palsy Survey
  11. NICPR Northern Ireland Cerebral Palsy Register
  12. cData from UK National Paediatric Diabetes Audit, children aged 14–18 years [39]
  13. 3Two sample t-test of difference in means between participants and comparators