Characteristics of young people with long term conditions close to transfer to adult health services

Table 2 Comparison between participants and population data of condition severity by health condition

AUTISM SPECTRUM DISORDER
Questionnaire	Participants			Australian source
Young person SDQ	n	Mean	SD	n	Mean	SD	p value¹
Total score	116	17.6	6.1	29	18.4	5.6	0.47
Emotional symptoms	116	4.8	2.5	29	4.5	3.0	0.68
Conduct problems	116	3.0	2.2	29	2.8	1.7	0.47
Hyperactivity	116	5.5	2.4	29	5.9	2.0	0.39
Peer Problems	116	4.2	2.2	29	5.2	2.7	0.07
Prosocial	116	6.5	2.1	29	7.0	2.0	0.23
	Participants			SNAP source
Parent-reported SDQ	n	Mean	SD	n	Mean	SD	p value¹
Total score	113	22.8	5.9	105	13.5	7.2	<0.001
Emotional symptoms	113	6.3	2.4	105	2.9	2.4	<0.001
Conduct problems	113	3.6	2.5	104	1.7	1.6	<0.001
Hyperactivity	113	6.7	2.5	105	4.8	2.8	<0.001
Peer Problems	113	6.2	2.2	105	4.1	3.1	<0.001
Prosocial	113	5.1	2.3	104	6.0	2.4	0.01
	Participants			SNAP source
SRS	n	Mean	SD	n	Mean	SD	p value¹
Total score	114	117.2	29.7	71	90.3	27.3	<0.001
CEREBRAL PALSY
Questionnaire	Participants^a			Regional samples: NECCPS & NICPR^b
GMFCS at age 5 years	n (%)			n (%)			p value²
I	25 (26)			95 (26)
II	42 (44)			159 (44)
III	16 (17)			59 (16)
IV	11 (11)			41 (11)
V	2 (2)			8 (2)
Total	96 (100)			362 (100)			0.99
DIABETES
Indicator	Participants			UK national data^c			p value³
	n	Mean	SD	n	Mean	SD
HbA1c (mmol/mol)	150	72.5	18.6	11676	71.6	22.6	0.56
Age at diagnosis (years)	150	9.5	3.8	11676	9.0	3.8	0.10

¹Two sample t-test of difference in means between participants and population data
SD Standard Deviation
SDQ Strength and Difficulties Questionnaire
SRS Social Responsiveness Scale
SNAP Special Needs and Autism Project
^aData missing from one site
^bThose born in region, 1995–98, IQ > 50
²Chi-squared test of difference in GMFCS distribution between participants and population data
GMFCS Gross Motor Function Classification System
NECCPR North of England Collaborative Cerebral Palsy Survey
NICPR Northern Ireland Cerebral Palsy Register
^cData from UK National Paediatric Diabetes Audit, children aged 14–18 years [39]
³Two sample t-test of difference in means between participants and comparators

ISSN: 1472-6963