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Table 1 Sample characteristics of interviewed CF patients (n = 74, SD in brackets)

From: Social and economic costs and health-related quality of life in non-institutionalised patients with cystic fibrosis in the United Kingdom

Average age (years)  
 All patients 18.3 (15.1)
 Adult patients 31.1 (10.1)
Sex  
 Male 52.7 %
 Female 47.3 %
Is there a caregiver?  
 Yes 44.6 %
 No 57.4 %
Average age of (principal) caregiver (years) 37.3 (11.6)
Average informal care hours per week (whole sample) 33.4 (52.9)
Average informal care hours per week (if there is a caregiver) 74.8 (56.5)
Health Related Quality of Life (Visual Analog Scale) 62.23 (20.09)
 Adult CF patients (n = 37)a  
 Visual Analog Scale score for general populationb 86.84 (14.41)
 Main Caregivers for CF patients (n = 33)c 80.85 (14.68)
 Visual Analog Scale score for general populationd 86.56 (13.79)
Health Related Quality of Life (EQ-5D index score)  
 Adult CF patients (n = 37)a 0.640 (0.264)
EQ-5D index score for general populationb 0.93 (0.15)
 Main Caregivers for CF patients (n = 33)c 0.836 (0.155)
 EQ-5D index score for general populationd 0.91 (0.16)
  1. aOf the 37 adult patients, 30 filled the HRQoL questionnaire, out of which 25 patients filled the questionnaire themselves, 1 patient filled it using assistance and 4 patients had the questionnaire filled in by someone else
  2. bReflects general population social tariffs/utilities for the respective patients’ age group (i.e. 25–34)
  3. cOf the 33 caregivers, 32 filled the HRQoL questionnaire
  4. dReflects general population social tariffs/utilities for the respective caregivers’ age group (i.e. 35–44)