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Table 2 Client Characteristics (Total Study Sample)

From: Informal caregivers of clients with neurological conditions: profiles, patterns and risk factors for distress from a home care prevalence study

Number of clients

 

ADRD

PD

MS

TBI

Epilepsy

CP

ALS

MD

SCI

HD

Stroke

None

Any

112,533

20,547

6,427

6,329

5,806

2,026

1,504

743

266

479

91,869

330,184

211,331

Age Group (%)

<65

2.8

5.5

67.7

41.7

47.1

87.5

45.8

72.4

59.4

63.9

9.4

22.5

11.0

65–74

9.8

18.3

18.8

15.0

16.5

8.0

28.9

14.0

19.2

20.9

15.6

16.3

13.3

75–84

43.6

49.8

10.9

24.7

23.1

3.7

21.6

10.2

15.4

13.4

40.2

32.0

39.7

85+

43.9

26.4

2.7

18.7

13.3

0.8

3.7

3.4

6.0

1.9

34.9

30.3

36.1

Mean Age (std)

Years

83.0 (8.5)

79.6 (8.8)

59.0 (13.6)

67.5 (18.2)

64.6 (18.7)

42.8 (17.3)

65.7 (12.1)

51.4 (19.5)

58.6 (18.3)

59.4 (14.5)

79.9 (11.0)

75.6 (15.2)

79.4 (12.5)

Female (%)

 

63.7

47.3

70.7

49.4

57.5

52.4

45.6

40.0

30.5

57.4

57.7

65.1

60.8

Married (%)

 

41.0

54.7

53.4

39.0

33.0

9.7

68.2

36.6

42.1ns

52.2

42.9

39.2

41.9

CPS Score 2+ (%)

 

92.7

57.4

28.0

61.9

55.0

50.1

17.0

12.5

6.8

74.7

52.1

19.6

67.4

ADL Hierarchy Score 2+ (%)

 

44.2

51.8

50.1

33.6

38.5

66.4

71.0

59.9

52.6

52.1

38.2

19.5

40.8

DRS Score 3+ (%)

 

19.6

18.4

16.2

21.7

16.5

9.9

26.9

10.2

13.5 ns

19.4

16.0

13.9

17.6

CHESS Score 2+ (%)

 

45.3

40.9

25.6

35.2

29.9

10.4

55.8

24.0

17.7

30.1

38.8

36.8

40.3

Aggressive Behavior (%)

 

26.3

9.7

3.9

14.7

11.5

12.0

3.1

3.5

4.2

22.3

9.7

3.3

16.5

Diagnoses (%)

CHF

10.3

9.5

3.1

9.3

6.8

1.6

1.8

6.6

4.5

0.6

16.8

13.7

11.8

CAD

21.8

22.1

8.4

19.8

16.0

2.7

8.4

9.5

10.0

5.1

31.9

22.9

24.2

Emph/COPD

11.7

11.4

9.0

16.2 ns

17.3 ns

10.6

8.0

11.1

10.3

9.7

16.9 ns

18.8

13.8

Diabetes

19.8

20.0

12.9

20.2

17.4

6.1

10.0

15.3

15.5

6.9

30.3

24.8

23.1

Cancer

8.6

9.8

6.0

10.3

9.9

2.8

3.7

3.9

5.8

3.6

11.9

23.7

9.9

Time on Home Care (%)

<1 year

60.8

52.3

40.1

58.9

52.5

37.1

70.0

41.8

47.6

49.2

54.1

66.3

57.1

1–< 2 years

16.7

17.5

11.4

12.7

13.4

10.7

15.6

12.9

12.9

16.3

14.8

11.7

15.5

2+ yrs

22.5

30.2

48.5

28.4

34.1

52.2

14.4

45.3

39.5

34.5

31.1

22.0

27.4

Mean Time on Home Care (std)

Years

1.3 (1.9)

1.7 (2.1)

3.5 (4.2)

1.8 (2.9)

2.2 (3.2)

3.9 (4.3)

1.1 (1.9)

3.1 (3.8)

2.7 (3.6)

1.9 (2.4)

1.8 (2.5)

1.3 (2.3)

1.6 (2.4)

Home Care Service

Home Health Aid

60.9

69.7

67.0

54.2 ns

62.7

72.2

58.2

65.2

64.1

59.0

65.6

48.7

62.6

Home-making

41.4

43.0

40.7

34.4 ns

37.1

39.6

27.6

32.5 ns

34.5 ns

33.1 ns

40.4

32.0

40.5

Visiting Nurse

24.0

23.4

30.8

26.0

26.5

18.8

37.9

20.9

43.1

14.0

27.2

38.7

25.4

  1. ns - All tests across characteristics for those with the given condition versus those without are statistically significant (p < .05) unless otherwise noted