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Table 1 Pilots’ features. Shows the heterogeneity in terms of main goals, services offered, target patients, and size of the 9 pilots involved within the PALANTE project

From: Empowering patients through eHealth: a case report of a pan-European project

Pilot # Main services offered Target users
Pilot 1 – Andalusia (Spain) Objective. To empower patients with diabetes and improve quality of life and diabetes management through a new eHealth solution that comprises: Diabetes 7,000 patients 6,500 Type 2 500 Type 1
▪ Patient access to Personal Health Record and management of personal health information (medications, appointments, exams, allergies, clinical reports)
▪ Chronic disease management support services: Recording and tracking of patient’s own measurements (blood sugar levels, weight, blood pressure) through tensiometers and glucometers
▪ Tailored education and lifestyle guidance through (virtual) games
▪ Secure messaging between patients and health care professionals
Pilot 2 – Lombardy (Italy) Objective. to empower patients with chronic heart failure disease by involving them in and integrate care pathways where a specialist follows them. Chronic Heart Failure Disease 3,400 patients
This is done through the SISS-DCPA tool available for producing Clinical Care Path document at the hospital, publishing and versioning on the EHR to share it with GP and patient. It comprises:
▪ Patient access to Personal Health Record and management of personal information: citizens can see his/her clinical documents and upload documents
▪ Tailored education and lifestyle guidance (guidelines, recommendations on lifestyle to adopt, diet, physical activities to do)
▪ Timeline view providing bird’s eye view of the HER
▪ OTP access (OTP sent via Mob. Phone) & Access with mobile devices
▪ Better integration with new services of booking and payment
Pilot 3 – Turkey Objective. To empower patients that suffer from ankylosing spondylitis, by follow them through a service that permits to have: Ankylosing Spondylitis 2,000 patients
▪ Tailored education and lifestyle guidance through Educational exercise videos on disease and treatments
▪ Messaging service between patient and doctor
▪ Diary service which allows patients to record their daily or weekly health status and inform the doctors if necessary (Patient Diary)
▪ Remote follow-up
▪ Chronic disease management
▪ Remote consultation
▪ Medication and non-pharmacological treatment follow-up and medication and non-pharmacological treatment benefit analysis
▪ Reminders
Pilot 4 – Norway Objective. To empower patients with diabetes and hospitalised patients for any disease by providing the following eHealth services: Diabetes 1,550 patients Discharge Notes 1,3 million of patients
▪ Electronic discharge notes in the local electronic health record
▪ Modules tailored for chronically ill patients (diabetes)
▪ Consultation form and self-reporting tools to support self-management
▪ A guidance tool that helps visualizing factors (food, insulin and physical activity) that influence blood sugar levels in a 24 hour clock, also used as a communicational tool
▪ Recording and tracking of patient’s own measurements (blood sugar levels, weight, blood pressure, HbA1c)
▪ Patient access to Personal Health Record
▪ Secure messaging between patients and health care professionals
▪ Integrated with MinJournal (Patient Portal)
Pilot 5 – Styria (Austria) Objective. To empower patients on their condition of X-ray exposure for estimating the risk level in making a new exam through an eHealth services that comprises: X-ray exposure 1,183 patients
▪ Patient access to his/her personal eX-ray-Record that reports personal achieved level of X-ray exposure
▪ Storing of individual information about radiation exposure data for all examinations into the existing Hospital Information System (HIS)
▪ Develop an informative and comprehensible presentation for the radiation exposure data
▪ Provide access for patients to their personal eX-ray-Record via a patient-portal on the internet (and for health professionals via the HIS)
Pilot 6 – Czech Rep. Objective. To empower parents in taking care of their children through a eHealth service that permits to: Children health management 3,352 patients
▪ Scheduling appointments
▪ Having access to Personal Health Record
▪ Monitoring individual parameters related to children growth
▪ Accessing to the Vaccinations program
▪ Monitoring the Preventive check-outs calendar
▪ Monitoring the child growth (height/weight)
▪ Sending alert reminders via SMS
Pilot 7 – Basque Country (Spain) Objective. To empower patients with COPD by including them in a telemedicine program with educational module to follow. The eHealth service includes: Asthma & COPD 150 patients
▪ Integration of all the data and information that a patient generates through the health services (health habits, treatment, symptoms, etc.)
▪ Patient access to Personal Health Record
▪ Tailored education and lifestyle guidance
▪ Telecare, Monitoring and Chronic disease management support services
▪ Real time health information uploading
▪ Secure text & voice messaging and videoconference with the healthcare team and alerts
▪ Telerehabilitation (physical exercises)
▪ Multi-platform: TV/Kinect & mobile
Pilot 8 – France Objective. To empower citizens providing the access to the personal information through the national health portal where it is possible: All Citizens/ Patients
▪ To view data and to be informed about new documents
▪ To correspond securely with a healthcare professional, after his consent
▪ To enter information: self-monitoring results, their wishes regarding arrangements at the end of their lives, etc.
▪ To download all or some of contents of the personal health folder
Pilot 9 Denmark Objective. To empower citizens providing the access to the personal information through the national Advanced eHealth portal with the following services: All Citizens/ Patients
▪ Patient management of personal health information
▪ Patient access to Personal Health Record
▪ Chronic disease management support services
▪ Lifestyle guidance
▪ National web-solution for citizens/patients and health professionals, integrating data from app. 100 sources
▪ Online EHRs from hospitals, cross-sectorial personal electronic medicine profile, access to lab/test results
▪ List of contacts with public hospitals and publically subsidised contacts in PHC
▪ Organ Donor Registration and Living Will
▪ Patient’s audit of any access to his/her data