Table 1 Pilots’ features. Shows the heterogeneity in terms of main goals, services offered, target patients, and size of the 9 pilots involved within the PALANTE project
From: Empowering patients through eHealth: a case report of a pan-European project
Pilot # | Main services offered | Target users |
|---|---|---|
Pilot 1 – Andalusia (Spain) | Objective. To empower patients with diabetes and improve quality of life and diabetes management through a new eHealth solution that comprises: | Diabetes 7,000 patients 6,500 Type 2 500 Type 1 |
▪ Patient access to Personal Health Record and management of personal health information (medications, appointments, exams, allergies, clinical reports) | ||
▪ Chronic disease management support services: Recording and tracking of patient’s own measurements (blood sugar levels, weight, blood pressure) through tensiometers and glucometers | ||
▪ Tailored education and lifestyle guidance through (virtual) games | ||
▪ Secure messaging between patients and health care professionals | ||
Pilot 2 – Lombardy (Italy) | Objective. to empower patients with chronic heart failure disease by involving them in and integrate care pathways where a specialist follows them. | Chronic Heart Failure Disease 3,400 patients |
This is done through the SISS-DCPA tool available for producing Clinical Care Path document at the hospital, publishing and versioning on the EHR to share it with GP and patient. It comprises: | ||
▪ Patient access to Personal Health Record and management of personal information: citizens can see his/her clinical documents and upload documents | ||
▪ Tailored education and lifestyle guidance (guidelines, recommendations on lifestyle to adopt, diet, physical activities to do) | ||
▪ Timeline view providing bird’s eye view of the HER | ||
▪ OTP access (OTP sent via Mob. Phone) & Access with mobile devices | ||
▪ Better integration with new services of booking and payment | ||
Pilot 3 – Turkey | Objective. To empower patients that suffer from ankylosing spondylitis, by follow them through a service that permits to have: | Ankylosing Spondylitis 2,000 patients |
▪ Tailored education and lifestyle guidance through Educational exercise videos on disease and treatments | ||
▪ Messaging service between patient and doctor | ||
▪ Diary service which allows patients to record their daily or weekly health status and inform the doctors if necessary (Patient Diary) | ||
▪ Remote follow-up | ||
▪ Chronic disease management | ||
▪ Remote consultation | ||
▪ Medication and non-pharmacological treatment follow-up and medication and non-pharmacological treatment benefit analysis | ||
▪ Reminders | ||
Pilot 4 – Norway | Objective. To empower patients with diabetes and hospitalised patients for any disease by providing the following eHealth services: | Diabetes 1,550 patients Discharge Notes 1,3 million of patients |
▪ Electronic discharge notes in the local electronic health record | ||
▪ Modules tailored for chronically ill patients (diabetes) | ||
▪ Consultation form and self-reporting tools to support self-management | ||
▪ A guidance tool that helps visualizing factors (food, insulin and physical activity) that influence blood sugar levels in a 24 hour clock, also used as a communicational tool | ||
▪ Recording and tracking of patient’s own measurements (blood sugar levels, weight, blood pressure, HbA1c) | ||
▪ Patient access to Personal Health Record | ||
▪ Secure messaging between patients and health care professionals | ||
▪ Integrated with MinJournal (Patient Portal) | ||
Pilot 5 – Styria (Austria) | Objective. To empower patients on their condition of X-ray exposure for estimating the risk level in making a new exam through an eHealth services that comprises: | X-ray exposure 1,183 patients |
▪ Patient access to his/her personal eX-ray-Record that reports personal achieved level of X-ray exposure | ||
▪ Storing of individual information about radiation exposure data for all examinations into the existing Hospital Information System (HIS) | ||
▪ Develop an informative and comprehensible presentation for the radiation exposure data | ||
▪ Provide access for patients to their personal eX-ray-Record via a patient-portal on the internet (and for health professionals via the HIS) | ||
Pilot 6 – Czech Rep. | Objective. To empower parents in taking care of their children through a eHealth service that permits to: | Children health management 3,352 patients |
▪ Scheduling appointments | ||
▪ Having access to Personal Health Record | ||
▪ Monitoring individual parameters related to children growth | ||
▪ Accessing to the Vaccinations program | ||
▪ Monitoring the Preventive check-outs calendar | ||
▪ Monitoring the child growth (height/weight) | ||
▪ Sending alert reminders via SMS | ||
Pilot 7 – Basque Country (Spain) | Objective. To empower patients with COPD by including them in a telemedicine program with educational module to follow. The eHealth service includes: | Asthma & COPD 150 patients |
▪ Integration of all the data and information that a patient generates through the health services (health habits, treatment, symptoms, etc.) | ||
▪ Patient access to Personal Health Record | ||
▪ Tailored education and lifestyle guidance | ||
▪ Telecare, Monitoring and Chronic disease management support services | ||
▪ Real time health information uploading | ||
▪ Secure text & voice messaging and videoconference with the healthcare team and alerts | ||
▪ Telerehabilitation (physical exercises) | ||
▪ Multi-platform: TV/Kinect & mobile | ||
Pilot 8 – France | Objective. To empower citizens providing the access to the personal information through the national health portal where it is possible: | All Citizens/ Patients |
▪ To view data and to be informed about new documents | ||
▪ To correspond securely with a healthcare professional, after his consent | ||
▪ To enter information: self-monitoring results, their wishes regarding arrangements at the end of their lives, etc. | ||
▪ To download all or some of contents of the personal health folder | ||
Pilot 9 Denmark | Objective. To empower citizens providing the access to the personal information through the national Advanced eHealth portal with the following services: | All Citizens/ Patients |
▪ Patient management of personal health information | ||
▪ Patient access to Personal Health Record | ||
▪ Chronic disease management support services | ||
▪ Lifestyle guidance | ||
▪ National web-solution for citizens/patients and health professionals, integrating data from app. 100 sources | ||
▪ Online EHRs from hospitals, cross-sectorial personal electronic medicine profile, access to lab/test results | ||
▪ List of contacts with public hospitals and publically subsidised contacts in PHC | ||
▪ Organ Donor Registration and Living Will | ||
▪ Patient’s audit of any access to his/her data |