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Table 2 Items required for explaining an EHR-linked research register, and how often they occur

From: Consenting for contact? Linking electronic health records to a research register within psychosis services, a mixed method study

Item #

Item

Clinician mentioned (Total potential n 100)

SU mentioned in consultation or summary to researcher (Total potential n 100)

1

Having a health record

77

0

2

Having an EHR

66

0

3

Confidentiality of EHR

28

0

4

Benefits of research

80

15

5

Types of research

54

12

6

Personalised example of research

48

4

7

Researchers have been ‘approved’

52

6

8

Researchers’ confidentiality

37

12

9

Researchers will identify you from EHR

62

12

10

Researchers may contact you in future

94

44

11

The register is voluntary

77

23

12*

Future studies are voluntary

62

17

13*

Service user can change their mind

69

23

14

Decision won’t affect care

32

2

15*

Can stipulate, i.e., what/when/how contacted

77

18

16

Ask whether they wish to join the register

84

0

17

Questions and concerns

67

0

18

Who to contact for further information

58

0

  1. *significant differences between ‘yes’ and ‘no/undecided’ samples