Item # | Item | Clinician mentioned (Total potential n 100) | SU mentioned in consultation or summary to researcher (Total potential n 100) |
---|---|---|---|
1 | Having a health record | 77 | 0 |
2 | Having an EHR | 66 | 0 |
3 | Confidentiality of EHR | 28 | 0 |
4 | Benefits of research | 80 | 15 |
5 | Types of research | 54 | 12 |
6 | Personalised example of research | 48 | 4 |
7 | Researchers have been ‘approved’ | 52 | 6 |
8 | Researchers’ confidentiality | 37 | 12 |
9 | Researchers will identify you from EHR | 62 | 12 |
10 | Researchers may contact you in future | 94 | 44 |
11 | The register is voluntary | 77 | 23 |
12* | Future studies are voluntary | 62 | 17 |
13* | Service user can change their mind | 69 | 23 |
14 | Decision won’t affect care | 32 | 2 |
15* | Can stipulate, i.e., what/when/how contacted | 77 | 18 |
16 | Ask whether they wish to join the register | 84 | 0 |
17 | Questions and concerns | 67 | 0 |
18 | Who to contact for further information | 58 | 0 |