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Table 6 Domains and categories by counts of study and study type

From: Health state descriptions to elicit stroke values: do they reflect patient experience of stroke?

Domains

Preference elicitation studies (n = 7), (%)

Qualitative literature (n = 28), (%)

Biophysical features

Mobility and ambulation

5 (71)

24 (86)

Coordination and dexterity

4 (57)

23 (82)

Fatigue

0 (0)

16 (57)

Paralysis

7 (100)

14 (50)

Feeling weakness- numbness, tingling

6 (86)

11 (39)

Dizzy/faint

0 (0)

6 (21)

Pain

1(14)

6 (21)

Sight

0 (0)

6 (21)

Toileting

2 (29)

4 (14)

Facial droop

3 (43)

3 (11)

Loss of swallow

0 (0)

3 (11)

Mood and cognition

Emotional difficulties

0 (0)

25 (89)

Expressive problems

6 (86)

17 (61)

Memory/thinking

4 (57)

13 (46)

Perplexity

0 (0)

11 (39)

Dissociation of self and body

0 (0)

9 (32)

Receptive problems

1 (14)

2 (7)

Prognosis

Getting better

0 (0)

22 (79)

Continuing or worsening disability

1 (14)

12 (43)

Further risk

0 (0)

11 (39)

Mortality

2 (29)

11 (39)

Social features

Change in self-identity, social role

0 (0)

26 (93)

Returning to normal activities

4 (57)

24 (86)

Support and networks

0 (0)

23 (82)

Dependence i.e. feeding, dressing, washing

7 (100)

20 (71)

Perception by others

0 (0)

15 (54)

Unpredictability, unreliability

0 (0)

14 (50)

Concern for NOK

0 (0)

14 (50)

Discharge from care and care arrangements

2 (29)

13 (46)