From: Health state descriptions to elicit stroke values: do they reflect patient experience of stroke?
Domains | Preference elicitation studies (n = 7), (%) | Qualitative literature (n = 28), (%) |
---|---|---|
Biophysical features | ||
Mobility and ambulation | 5 (71) | 24 (86) |
Coordination and dexterity | 4 (57) | 23 (82) |
Fatigue | 0 (0) | 16 (57) |
Paralysis | 7 (100) | 14 (50) |
Feeling weakness- numbness, tingling | 6 (86) | 11 (39) |
Dizzy/faint | 0 (0) | 6 (21) |
Pain | 1(14) | 6 (21) |
Sight | 0 (0) | 6 (21) |
Toileting | 2 (29) | 4 (14) |
Facial droop | 3 (43) | 3 (11) |
Loss of swallow | 0 (0) | 3 (11) |
Mood and cognition | ||
Emotional difficulties | 0 (0) | 25 (89) |
Expressive problems | 6 (86) | 17 (61) |
Memory/thinking | 4 (57) | 13 (46) |
Perplexity | 0 (0) | 11 (39) |
Dissociation of self and body | 0 (0) | 9 (32) |
Receptive problems | 1 (14) | 2 (7) |
Prognosis | ||
Getting better | 0 (0) | 22 (79) |
Continuing or worsening disability | 1 (14) | 12 (43) |
Further risk | 0 (0) | 11 (39) |
Mortality | 2 (29) | 11 (39) |
Social features | ||
Change in self-identity, social role | 0 (0) | 26 (93) |
Returning to normal activities | 4 (57) | 24 (86) |
Support and networks | 0 (0) | 23 (82) |
Dependence i.e. feeding, dressing, washing | 7 (100) | 20 (71) |
Perception by others | 0 (0) | 15 (54) |
Unpredictability, unreliability | 0 (0) | 14 (50) |
Concern for NOK | 0 (0) | 14 (50) |
Discharge from care and care arrangements | 2 (29) | 13 (46) |