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Table 1 Categories of data to measure adherence to guidelines

From: Utility of routine data sources for feedback on the quality of cancer care: an assessment based on clinical practice guidelines

 

Data items

Category 1

 

   Population-based cancer registry, with or with linkage to administrative inpatient data

Demographics

 

Site of cancer

 

Morphology

 

Summary staging information at time of diagnosis (local, regional, distant spread)

 

Type and date of inpatient surgery

 

Co-morbidities (pre-existing and complications)

Category 2

 

   Core clinical registry

Type and date of initial treatments

 

Intent of treatment (curative versus palliative)

 

Clinical (TNM) stage at diagnosis

 

Performance status

 

Specific prognostic factors (e.g., hormone receptor status for breast cancer)

 

Assessment by multidisciplinary team

 

Participation in clinical trial

Category 3

 

   Extended clinical registry or medical record review

Long-term follow up

 

Management of disease progression

 

Management of complications of cancer therapies (e.g., anti-emetics, heparin)

 

Details of surgical techniques (e.g., omental covering of anastomosis, on-table colonic lavage)

Category 4

 

   Patient interview

Information sharing between clinicians and patients, for example

   Audio-taping of consultation

   • Method of breaking bad news

 

   • Inquiries about how spouse and children were coping

 

   • Resolution of family conflicts

 

   • Information provided to help woman choose between breast-conserving surgery and mastectomy