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Table 2 Summary of disclosure behaviours

From: Appropriate disclosure of a diagnosis of dementia: identifying the key behaviours of 'best practice'

 

Category (number of behaviours)

Sub-categories (number of behaviours)

1

Preparing for disclosure (31)

• Plan disclosure meeting (14)

  

• Arrange post-diagnosis support (2)

  

• Establish rapport (3)

  

• Prepare the patient (4)

  

• Elicit preferences for disclosure (8)

2

Integrating family members (10)

• Identify & involve appropriate family members (4)

  

• Manage differing information needs of patient & family (2)

  

• Avoid collusion with family members (4)

3

Exploring the patient's perspective (13)

• Explore patient ideas (11)

  

• Elicit patient expectations (2)

4

Disclosing the diagnosis (33)

• Tailor information to patient preferences & ideas (7)

  

• Check understanding (7)

  

• Explore the meaning(s) of the diagnosis (12)

  

• Discuss prognosis (7)

5

Responding to patient's reactions (24)

• Explore the patient's emotional response (11)

  

• Elicit & address patient questions & concerns (13)

6

Focusing on quality of life & well-being (17)

• Foster hope (9)

  

• Explore coping strategies (8)

7

Planning for the future (41)

• Clarify follow up arrangements (8)

  

• Discuss support services available (7)

  

• Negotiate management plan (19)

  

• Discuss prevention & health promotion (7)

8

Communicating effectively (51)

• Develop rapport (5)

  

• Use appropriate verbal & non-verbal communication (20)

  

• Use active listening skills (5)

  

• Involve the patient (8)

  

• Structure & signpost the consultation (7)

  

• Consider issues of anti-discriminatory practice (6)