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Table 1 Approach to potential participants to invite them to participate in the GaP study

From: Protocol for stage 2 of the GaP study (genetic testing acceptability for Paget's disease of bone): A questionnaire study to investigate whether relatives of people with Paget's disease would accept genetic testing and preventive treatment if they were available

 

PRISM

PDFR

Edinburgh

NARPD

Probands

Approach directly (after consultation with caring physician)

Approach directly (after consultation with caring physician)

Approach directly (after consultation with caring physician)

Approach directly

Relatives

Approach via proband

Approach directly (after consultation with caring physician)

Approach via proband

Approach via proband