Table 2 Outcome measures
| Variable | Instrument | ||||||
|---|---|---|---|---|---|---|---|
| Background variable | |||||||
| Secondary outcome | |||||||
| Primary outcome | Measured at | T 0 | T 1 | T 2 | |||
| Functional performance (ADL/IADL) |
|
|
| GARS-3 [27] |
|
|
|
| • Mobility |
|
|
| Timed up and go test [44] |
|
|
|
| Health Related quality of life |
|
|
| MOS-20 [26] |
|
|
|
| Mood |
|
|
| Subscale mental health MOS-20 |
|
|
|
| Well-being |
|
|
| Cantril self-anchoring ladder [45] |
|
|
|
| Dementia Quality of Life questionnaire [46] |
|
|
| ||||
| question general life satisfaction |
|
|
| ||||
| Cognition |
|
|
| MMSE [25] |
|
|
|
| Social functioning |
|
|
| Loneliness scale de Jong-Gierveld [47] |
|
|
|
| Mortality |
|
|
|
|
|
| |
| Housing conditions/sort of residence |
|
|
| Own questionnaire |
|
|
|
| Subjective treatment effects (participant, informal carer) |
|
|
| Patient Enablement Instrument [48] |
|
|
|
| Burden informal carer |
|
|
| Zarit Burden Interview [41] |
|
|
|
|
|
|
| Questions taken from 'Zorgkompas Mantelzorger' [49] |
|
|
| |
| Time spend on care (informal carer) |
|
|
| Own questionnaire |
|
|
|
| Age (participant, informal carer) |
|
|
| Own questionnaire |
|
|
|
| Sex (participant, informal carer) |
|
|
| Own questionnaire |
|
|
|
| Socio-economic status |
|
|
| Own questionnaire, classify using ISEI-92 [50] |
|
|
|
| • (Former) occupation |
|
|
| Own questionnaire, classify using SBC-92 [50] |
|
|
|
| Nativity |
|
|
| Own questionnaire |
|
|
|
| Co-morbidity |
|
|
| Cumulative Illness Rating Scale-Geriatrics (CIRS-G) [51] from medical history in GP Information System |
|
|
|
| Use of home care |
|
|
| Own questionnaire |
|
|
|