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Table 2 Selected items for the final questionnaire, based on frequency of selection by the participants (n = 86)

From: Measuring satisfaction with health care in young persons with inflammatory bowel disease -an instrument development and validation study

Item

Origin

Category

Content

Frequency of selection in %

  Reason for selection

1

P

A

Appointments compatible with school/working schedule

33.7

 

2

P

A

Same day emergency appointment

72.1

  Top 2

3

P

CO

No difference based on insurance status

65.1

  Top 3

4

P

CO

Easy access to follow-up prescriptions

45.3

 

5

P

CO

No unnecessary investigations

41.9

 

6

P

CO

Liquid laxative with acceptable taste

46.5

 

7

P

CO

Share experiences with other patients

43.0/51.2

 

8

P

CO

Treatment in specialized hospitals

51.2

 

9

P

AC

Clean and hygienic office

73.3

  Top 1

10

P

AC

Sufficient number of clean restrooms

43.0

 

11

P

CC

Treatment always by the same doctor

48.8

 

12

D

CC

Cooperation of doctor with IBD clinics

44.2

 

13

D

CC

Smooth communication between GP and IBD doctor

41.9

 

14

P

CC

Involvement of psychologist/psychotherapist

65.1

  Expert opinion

15

P

CC

Involvement of other specialized doctors

76.7

 

16

P

C

Individual treatment

53.5

 

17

P

C

Understanding of fears and worries

54.7

  Female

18

P

C

Discusses investigations/results

50.0

 

19

P

C

Taking personal situation into account

47.7

  Age 18-20

20

P

C

Devoting enough time

39.5

  Age 15-17

21

P

C

Showing that it is important that the patient gets better

44.2

 

22

P

C

Bearing personal life planning in mind

38.4/39.5/32.6

 

23

P

C

Friendly and polite nurses

57.0

 

24

P

C

Understanding and respectful nurses

55.8/53.5

 

25

P

I

Explanations in easy-to-understand language

25.6

  Age 15-17

26

P

I

Information about investigations/results

43.0/58.1

 

27

P

I

Listening/responding to problems

46.5

 

28

P

CM

Experience in IBD treatment

52.3

 

29

P

CM

up to date knowledge about IBD

45.3

 

30

P

CM

Alternatives to steroid treatment

40.7

  Age 18-20

31

P

AU

Coordination of therapeutic decisions

48.8

 

32

L

AU

Facilitates 2nd opinion

46.5

 
  1. Explanation: If two or three items were collapsed into one, the frequencies of all original items are shown (see Item 7, 22, 24, and 26). If an item was selected because of top preference in a subgroup (sex, age), this is documented in the last column. P = Qualitative Patient Survey, D = Qualitative Doctor Survey, L = Literature. A = Accessibility, CO = Costs and Organization, AC = Accommodation, CC = Continuity of Care, C = Courtesy, I = Information, CM = Competence, AU = Autonomy.
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