Table 2 Interview topics for participants/family caregivers and health professionals

Participants/family care givers

• Can you tell about your life at the moment?

• How do you perceive your own health at the moment?

• Do you have any problems related to movement, balance, nutrition or swallowing?

• Do you experience any challenges with taking the initiative?

• Do you experience any challenges with communication or behaviour?

• How did you experience the stay at the rehabilitation centre?

• What do you think about the information you got before the stay?

• Do you feel that the professionals at the centre understood you?

• Did you have a contact person?

• Was the program tailored to your wishes and goals?

• How did you experience the process of clarifying your goals?

• How was goals evaluated during the course of the programme?

• Were you involved in developing an individual plan?

• What do you think about the content of the program?

• What did you experience as most useful?

• Has the program had any impact on your life after the stay?

• What information were you given when you left the institution?

• Was information sent to others?

• What are your experiences with your municipality health care?

• Can you please tell about any follow-up from the rehabilitation institution?

• Do you experience any outcomes of the program? And if yes, what?

• How can the centre improve the program?

Health professionals

• Can you explain your role in the program?

• Can you describe the content of the program from your perspective?

• Have you any previous experience with patients with Huntington’s disease?

• How did you experience the planning phase?

• What did the team do to map participants’ challenges with motor function, problems with swallowing, social function, and nutritional and behavioural issues?

• Can you tell about processes to clarify participants’ goals for the stays?

• Did you evaluate these goals?

• Was an individual plan made?

• What are your experiences with collaborating with participants’ municipalities?

• How did you experience the program? What adjustments were made and what are the lessons learned?

• How can the program be improved?