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Table 2 Characteristics of studies and themes identified in thematic analysis of attitudes to clinical practice guidelines (19 included studies)

From: Patient and public attitudes to and awareness of clinical practice guidelines: a systematic review with thematic and narrative syntheses

Author year Aim Participants and study location Key themes identified by reviewers
Study design
Quality
Akl 2007 [37] To evaluate the use of symbols and words to present information on the strength of recommendations 84 participants, 64.1% female, 48.6% graduate - part of community health education programme; USA Evidence behind recommendations; format issues
RCT
Fair
Berry 2010 [23] To gain an understanding of public perceptions of Physical Activity guidelines put forward by a public health agency 22 participants in five focus groups, 18 to 70 years; Type II diabetes or cardiovascular disease; Canada Patient as individual; format issues
Qualitative study
Good
Carman 2010 [6] To determine how the concept of making health care decisions based on evidence of effectiveness could be translated into language that consumers would understand 34 consumers in 4 focus groups, 57 interviews and 1558 employees, 18–64; USA Patient as individual; Guidelines control care; Guidelines as rules; Guidelines for physicians; Communicate with physician;Trustworthiness
Qualitative study
Fair
Crocetti 2004 [26] To determine awareness and knowledge of infant feeding guidelines 102 Primary female caregivers mean age 27 years; 34% African American; 64% completed high school; Maryland, USA Patient as individual
Cross sectional study
Good
Dykes 2004 [15] To evaluate a tool to drive patient centred evidence based recommendations to facilitate guideline adherence 3 evaluators mean age 71 years, TV literate bedbound patients and carers (higher retirement income); Connecticut, USA Self management; Format issues
Qualitative study
Poor
Eaton 2011 [38] To determine whether an intervention based on patient activation and a physician support tool was more effective than usual care to improve adherence to National Cholesterol Education Program guidelines (USA) 4105 patients; primary care; mean age 52 control/54 intervention; 96% white; 59% female, southeastern New England, USA. Communicate with physician, decision making; Self management; Patient as individual. Format issues
RCT cluster randomised
Good
Elad 2011 [27] To gauge acceptance of 2007 American Heart Association guidelines on antibiotic prophylaxis after being notified about change by doctor 51 patients, 58 ± 17 yrs, 40% female with endocarditis; Israel. Applicability of guideline information; Communicate with physician; Trustworthiness
Cross sectional study
Good
Faruqi 2000 [16] To determine views, how to put into practice and disseminate clinical management of diabetes mellitus guidelines 5-20 participants recruited through Diabetes Australia in four focus groups; Sydney, Australia Self-management; Communicate with physician; Guidelines for physicians; Format issues
Qualitative study
Poor
Geiger 2001 [17] To determine awareness of dietary guidelines and test presentation formats 40 men and women (25–45); Missouri, USA Guidelines for physicians; Guidelines control care; format issues
Qualitative study
Poor
Julian 2010 [18] To determine knowledge and attitudes of women with menstrual disorders towards the use of evidence based clinical guidelines for their condition 24 women (22–54) attending secondary care; Leicestershire, England Guidelines as rules; Guidelines control care; Guidelines for physicians; Patient as individual;
Qualitative study
Good
Keenan 2002 [29] To examine knowledge and understanding and factors that influence knowledge - media/nonmedia/age and education 400 adults over 18 years old, 51.8% college degree, 56% female; Minnesota, USA Format issues
Cross sectional study
Fair
McFarlane 2012 [30] To determine public awareness of National Institute for Health and Care Excellence (NICE) guidelines and their implementation 1675 respondents (70% female, 61% (45–74 yrs old), 17% health care professionals); mostly England and Wales, UK Guidelines for physicians; Guidelines control care
Cross sectional study
Fair
Michie 2005 [39] To evaluate knowledge of guideline and take up when using behaviourally specific language 84 mental health users; 41–50 years; 51% women; London, UK Format issues
RCT
Poor
Miroballi 2012 [31] To determine awareness of infection control guidelines 1399 Cystic Fibrosis patients and their families, 38% patients, 62% family members; USA Communicate with physician
Cross sectional study
Fair
Mitchell 2004 [19] To determine knowledge of evidence based medicine and guidelines 33 patients with colorectal cancer and 9 carers, 43 to 86 years; 66% male, many had not completed high school; Austin, Victoria, Australia Communicate with physician
Qualitative study
Fair
Owen-Smith 2010 [20] To investigate patients’ and healthcare providers’ experiences of, and preferences for, implicit and explicit healthcare rationing 56 participants (31 patients, clinicians, healthcare managers); morbid obesity and breast cancer; Bristol, UK Guidelines control care
Qualitative study
Fair
Quintana 2001 [21] To explore how best to use the Internet to make evidence-based preventive health care guidelines available to physicians and consumers 39 participants (22 men, 17 women, 56% men), 35 to 65 years, experience using the Internet; Canada. Format issues; self management; Trustworthiness; evidence behind recommendations; Communicate with physician; Decision making
Qualitative study
Good
Royak-Schaler 2008 [22] To investigate patient-physician communication from the patient’s perspective about guidelines 39, age 30–75 (mean age 55), 72% college education, breast cancer survivors, all African American; Baltimore, USA Self-management; Communicate with physician
Qualitative study
Fair
SIGN 2011 [34] To investigate public awareness of Scottish Intercollegiate Guidelines Network (SIGN) guidelines and their implementation 239 respondents (66% female, 74% 45–74 yrs old, 61% had specific condition or disability); mostly Scotland, UK Format issues; Evidence behind recommendations; Guidelines improve care; Guidelines for physicians
Cross sectional study
Fair
Squiers 2011 [35] To assess how knowledgeable women were about the new recommendations in mammography 1221 women, 40–74, who had never had breast cancer; USA Format issues; Evidence behind recommendations; Guidelines control care
Cross sectional
Good
  1. RCT: randomised controlled trial.