Table 1 Search terms and general inclusion/exclusion criteria for published and unpublished (Grey) literature search
Published literature | Grey (Unpublished) literature |
|---|---|
Search terms used | Search terms used |
Applying ‘patient engagement’, ‘patient involvement’, ‘patient participation’ to those below: | Applying ‘patient engagement’, ‘patient involvement’, ‘patient participation’ initially followed with ‘healthcare’, ‘decision making’, advisory committees’, and other terms pertaining to more specific engagement approaches, education/training, tools, resources, and infrastructure supports and evaluation considerations. |
• ’knowledge and skills…’ | |
• ‘design, delivery and/or evaluation processes. | |
•‘…readiness for meaningful engagement’. | |
• ‘Process and impact of patient engagement’. | Also applied terms to specific countries known for patient/public engagement strategies. |
• ‘…resources (e.g. tools), needed by patients, providers, staff and leaders for effective patient engagement/involvement/ participation | Australia |
United Kingdom and rest of Europe | |
United States | |
• ‘…preparation (e.g. education) needed by all stakeholders….’ | |
• ‘support (e.g. infrastructure) needed by everyone for ….’ | |
• ‘…in patient-centered system redesign; …to build capacity; …to “pilot” a resource kit; …evaluate the impact’ | |
• ‘Patient engagement/involvement/ participation resource kit’ | |
• ‘…best practices…validated tools…proven approaches’ | |
• ‘Recruit patients…’ | |
• ‘…spectrum or level of engagement…ready for successful engagement’ | |
• ‘…knowledge and skills needed | |
• ‘…engagement at different levels within the organization (governance, to program-based planning and evaluation) | |
• ‘…collaboration and partnering…’ | |
• ‘…organizational policies and practices…’ | |
• ‘…resources…’ | |
• ‘…capacity…’ | |
Inclusion criteria for articles | Inclusion criteria of literature |
• From 1995-2010 | • From 1995-2010 |
• Written in English | • Written in English |
• Abstracts containing one or more of the key search terms or areas as identified in the research proposal. | • Contains one or more of the key engagement-related and healthcare terms or areas. |
• Studies that refer to the involvement of patients at the program or governance levels | • From United States, Canada, Australia, and Europe (with special emphasis on United Kingdom). |
Exclusion criteria of articles | Exclusion criteria of literature |
• Incorporate public or consumer engagement in areas outside of healthcare. | • Incorporates public or citizen engagement or similar areas rather than patient engagement, and in areas outside of health. |
• Refer to involvement of the patients outside of the governance or program level. | • Refers to the involvement of the patients outside of the governance/program level. |
• Involve patients in their own treatment and care aspects or in personal healthcare decision making. |