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Table 2 Data collection in Phase 3

From: Multidisciplinary teams, and parents, negotiating common ground in shared-care of children with long-term conditions: A mixed methods study

Method used

Context of data collection

86 observations of parent/professional interactions

• In wards, outpatient departments and families’ homes during planned and ad-hoc interactions

• Verbatim field notes (recording behaviours, context, time, personnel and environment).

41 individual semi-structured interviews with family members and professionals following selected observations

• Exploring participants’ views about how parents were supported to deliver home-based clinical care, including the effectiveness of the observed interactions

• Interviews lasted 20 – 65 minutes, were digitally recorded and transcribed verbatim.

Selected case-note reviews

• Obtained relevant background information and noted how professionals documented interactions with parents.

Reviews of documents

• Used by professionals and parents to support their interactions

• Used by parents to record home-based clinical caring