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Table 1 Characteristics of patients and carers

From: A patient-centred approach to health service delivery: improving health outcomes for people with chronic illness

Categories Sub-categories Patient (N = 52) §Carer (N = 14)
Residence ACT 26 (50.0%) 6 (42.9%)
Sydney West 26 (50.0%) 8 (57.1%)
Gender Male 28 (53.8%) 1 (07.1%)
Female 24 (46.2%) 13 (92.9%)
Age Less than 45 yrs ^1 (1.9%) 2 (14.3%)
45-64 yrs 16 (30.8%) 5 (35.7%)
65-85 yrs 35 (67.3%) 7 (50.0%)
Culturally and linguistically diverse (CALD) CALD background 11 (21.2%) 5 (35.7%)
Indigenous Indigenous background 7 (13.5%) 0
Finance Experiencing financial difficulties 31 (59.6%) 11 (78.6%)
Marital Status Married/de facto/living with a partner 29 (55.8%) 13 (92.9%)
Work Status Employed 5 (9.6%) 2 (14.3%)
Not employed 47 (90.4%) 12 (85.7%)
Diagnosis Type 2 diabetes 16 (30.8%) *4 (28.6%)
CHF 15 (28.8%) *2 (14.3%)
COPD 10 (19.2%) *5 (35.7%)
More than one index condition 11 (21.2%) *3 (21.3%)
Average length of illness 16.5 years *21.4 years
Other co-morbid conditions 43 (86.5%) *11 (85.7%)
Visit to GP Weekly 4 (7.7%) *1 (7.1%)
Fortnightly 8 (15.4%) *6 (42.9%)
Monthly 23 (44.2%) *5 (35.7%)
Bi-monthly 3 (5.8%) *0
Quarterly 7 (13.5%) *1 (7.1%)
Half-yearly 2 (3.8%) *0
Only when necessary 5 (9.6%) *1 (7.1%)
Family Carer Have a family carer #22 (42.3%) NA
Average length of caring #14.7 years 12.5 years
Relationship of carer to patient   
Offspring 6 (27.3%) 4 (28.6%)
Spouse/partner 14 (63.6%) 10 (71.4%)
Other 2(9.1%) 0
Carer receives financial assistance #5 (22.7%) 5 (35.7%)
Carer receives informal support #14 (63.6%) 9 (64.3%)
  1. § Nine carers were spouses or offspring of the patients interviewed, ^ One Indigenous participant was younger than 45 years old (given a gap of approximately 20 years shorter life expectancy than non-Indigenous Australian it was deemed to be appropriate to be included in the study), * Denotes the carer’s account about the patient’s condition and management.
  2. # Denotes the patient’s account about the carer.