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Table 3 Endpoints

From: Improving the quality of palliative and terminal care in the hospital by a network of palliative care nurse champions: the study protocol of the PalTeC-H project

Quality of life during the last 3 days of life and Quality of dying Process of care Satisfaction with health care in the last 3 days of life
Quality of life: Perceptions by relatives and health care providers of quality of life during last 3 days of life: Global rate (0–10) Technical process Appropriate use of nursing interventions Changes in treatment policy/NTBR Patient satisfaction with care: Perceptions by relatives: Preferences honoured regarding way of dying Satisfaction with:
Physical comfort Psychological well-being Social functioning and well-being Spiritual well-being, being in peace Symptom management Recognition of imminent death Referrals to multidisciplinary consultation team - technical process
- decision making process
- interpersonal and communication style
Quality of dying of patient Perceptions by family and health are providers of quality of dying of patient: Global rate (0–10)   Relatives’ satisfaction with care Satisfaction with:
- technical process
Life closure and death preparation Circumstances of death - decision making process
  - timeliness and usefulness of information and counselling
- interpersonal and communication style
Quality of life of family Health status Grief resolution   - extent to which patient/family preferences honoured
   - extent to which opportunities provided to patient to complete life meaningfully
   - present at patients’ death
  1. Derived and adapted from Stewart et al. (1999) Conceptual model of factors affecting quality and length of life of dying patients and their families.