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Table 3 Endpoints

From: Improving the quality of palliative and terminal care in the hospital by a network of palliative care nurse champions: the study protocol of the PalTeC-H project

Quality of life during the last 3 days of life and Quality of dying

Process of care

Satisfaction with health care in the last 3 days of life

Quality of life: Perceptions by relatives and health care providers of quality of life during last 3 days of life: Global rate (0–10)

Technical process Appropriate use of nursing interventions Changes in treatment policy/NTBR

Patient satisfaction with care: Perceptions by relatives: Preferences honoured regarding way of dying Satisfaction with:

Physical comfort Psychological well-being Social functioning and well-being Spiritual well-being, being in peace

Symptom management Recognition of imminent death Referrals to multidisciplinary consultation team

- technical process

- decision making process

- interpersonal and communication style

Quality of dying of patient Perceptions by family and health are providers of quality of dying of patient: Global rate (0–10)

 

Relatives’ satisfaction with care Satisfaction with:

- technical process

Life closure and death preparation Circumstances of death

- decision making process

 

- timeliness and usefulness of information and counselling

- interpersonal and communication style

Quality of life of family Health status Grief resolution

 

- extent to which patient/family preferences honoured

  

- extent to which opportunities provided to patient to complete life meaningfully

  

- present at patients’ death

  1. Derived and adapted from Stewart et al. (1999) Conceptual model of factors affecting quality and length of life of dying patients and their families.