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Table 4 Caregiver-reported Health and Social Service Utilization

From: Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration

  Baselinea Mean (SD) (n=81) Median (IQR) 6 Months Mean (SD) (n=77) Median (IQR) 12 Months Mean (SD) (n=79) Median (IQR) *P value *P value (T1-T2) *P value (T2-T3) *P value (T1-T3)
Variable           
Physician/specialist visits $502 (574) $282 (398) $356 (346) $249 (360) $317 (357) $196 (307) 0.09    
Other health care provider visits $4147 (5607) $2424 (4018) $4353 (6335) $2115 (4058) $4965 (6558) $2936 (6028) 0.03 0.25 0.03 0.99
Total health care provider visits $4649 (5584) $2868 (3803) $4709 (6341) $2709 (4358) $5281 (6585) $3113 (5788) 0.01 0.03 0.05 0.99
Use of community support services $781 (2008) $0 (280) $895 (1640) $0 (1200) $863 (1750) $0 (958) 0.73    
Diagnostic tests $131 (226) $42 (186) $153 (243) $53 (158) $109 (193) $34 (123) 0.01 0.18 0.99 0.008
Specialty Items b $276 (1063) $0 (0) $361 (1663) $0 (8) $140 (392) $0 (0) 0.70    
Medication costs $482 (422) $356 (359) $455 (383) $356 (415) $385 (338) $345 (449) <.0001 0.003 <.0001 <.0001
Transportation within Ontario $474 (892) $174 (468) $434 (791) $188 (379) $373 (660) $153 (346) 0.23    
Work loss due to illness $502 (1648) $0 (148) $285 (698) $0 (240) $292 (1258) $0 (0) 0.55    
Work loss due to treatment $238 (654) $0 (0) $85 (348) $0 (0) $159 (1191) $0 (0) 0.002 0.26 0.63 0.0006
Government cheque received $1820 (3220) $680 (2580) $2161 (1923) $1575 (3084) $5620 (27817) $1720 (3198) 0.005 0.98 0.92 <.0001
Out of pocket expenses $2267 (3583) $813 (2793) $3875 (3151) $3111 (4489) $1827 (2610) $538 (2748) <.0001 0.001 0.0001 0.96
  1. * Analyses using Friedman test; post-hoc testing on results where p<.05 with Sidak adjustments used to adjust the P value for multiple comparisons.
  2. a Parental report on 6 months prior to intervention.
  3. b Specialty items include special treatment (e.g. chemotherapy, antibiotics, injections, vaccinations, etc.) and supplies, aids or devices (wheelchairs, syringes, walker, etc.).
  4. c Government cheque includes all forms of government assistance, including: disability and treatment, child tax benefit, day care, workers compensation, old age security, disability pension, Ontario Guaranteed Annual Income Supplement (GAINS), Veteran’s pension, employment insurance, and social assistance [23].
  5. d Out of pocket expenses is based on the sum of community support services costs, specialty item costs, transportation costs and work loss costs.