Integrated complex care coordination for children with medical complexity: A mixed-methods evaluation of tertiary care-community collaboration

Table 4 Caregiver-reported Health and Social Service Utilization

	Baseline^a Mean (SD)	(n=81) Median (IQR)	6 Months Mean (SD)	(n=77) Median (IQR)	12 Months Mean (SD)	(n=79) Median (IQR)	*P value	*P value (T1-T2)	*P value (T2-T3)	*P value (T1-T3)
Variable
Physician/specialist visits	$502 (574)	$282 (398)	$356 (346)	$249 (360)	$317 (357)	$196 (307)	0.09
Other health care provider visits	$4147 (5607)	$2424 (4018)	$4353 (6335)	$2115 (4058)	$4965 (6558)	$2936 (6028)	0.03	0.25	0.03	0.99
Total health care provider visits	$4649 (5584)	$2868 (3803)	$4709 (6341)	$2709 (4358)	$5281 (6585)	$3113 (5788)	0.01	0.03	0.05	0.99
Use of community support services	$781 (2008)	$0 (280)	$895 (1640)	$0 (1200)	$863 (1750)	$0 (958)	0.73
Diagnostic tests	$131 (226)	$42 (186)	$153 (243)	$53 (158)	$109 (193)	$34 (123)	0.01	0.18	0.99	0.008
Specialty Items ^b	$276 (1063)	$0 (0)	$361 (1663)	$0 (8)	$140 (392)	$0 (0)	0.70
Medication costs	$482 (422)	$356 (359)	$455 (383)	$356 (415)	$385 (338)	$345 (449)	<.0001	0.003	<.0001	<.0001
Transportation within Ontario	$474 (892)	$174 (468)	$434 (791)	$188 (379)	$373 (660)	$153 (346)	0.23
Work loss due to illness	$502 (1648)	$0 (148)	$285 (698)	$0 (240)	$292 (1258)	$0 (0)	0.55
Work loss due to treatment	$238 (654)	$0 (0)	$85 (348)	$0 (0)	$159 (1191)	$0 (0)	0.002	0.26	0.63	0.0006
Government cheque received	$1820 (3220)	$680 (2580)	$2161 (1923)	$1575 (3084)	$5620 (27817)	$1720 (3198)	0.005	0.98	0.92	<.0001
Out of pocket expenses	$2267 (3583)	$813 (2793)	$3875 (3151)	$3111 (4489)	$1827 (2610)	$538 (2748)	<.0001	0.001	0.0001	0.96

* Analyses using Friedman test; post-hoc testing on results where p<.05 with Sidak adjustments used to adjust the P value for multiple comparisons.
^a Parental report on 6 months prior to intervention.
^b Specialty items include special treatment (e.g. chemotherapy, antibiotics, injections, vaccinations, etc.) and supplies, aids or devices (wheelchairs, syringes, walker, etc.).
^c Government cheque includes all forms of government assistance, including: disability and treatment, child tax benefit, day care, workers compensation, old age security, disability pension, Ontario Guaranteed Annual Income Supplement (GAINS), Veteran’s pension, employment insurance, and social assistance [23].
^d Out of pocket expenses is based on the sum of community support services costs, specialty item costs, transportation costs and work loss costs.

ISSN: 1472-6963