Table 2 Outcome measures in the COMPAS study

Primary outcomes

Neuropsychiatric inventory [37]

Behavioural and psychological symptoms *

X

X

X

X

X

Secondary outcomes

Quality of Life in Alzheimer’s Disease [45]

Quality of Life**

X

X

X

X

X

Short Form-12 [46]

Health related Quality of Life*

X

X

X

X

X

EuroQol- 5D + C [47]

Health Related Quality of Life**

X

X

X

X

X

Camberwell assessment of needs for the elderly (CANE) [21, 48]

Needs**

X

X

X

X

X

Cost outcomes

Cost diary

Economic evaluation

X

X

X

X

X

Time between diagnosis and institutionalization

Economic evaluation

X

X

X

X

X

Time between first symptoms and institutionalization

Economic evaluation

X

X

X

X

X

Effect modifiers or confounders

Age

X

Gender

X

Marital status

X

Living accommodation

Living alone or with someone

X

Education

X

Mini Mental State Exam [49]

Cognition

X

X

X

KATZ Activities of Daily Living-5 [50]

Activities of daily living*

X

X

X

X

X

Co-morbidity

X

Dementia type

X

Time in case management

X

Caregiver

Primary outcomes

General Health Questionnaire −12 [38]

Emotional stress mental health complaints

X

X

X

X

X

Secondary outcomes

Short Sense of Competence Questionnaire SSCQ [51]

Perceived care competence

X

X

X

X

X

Pearlin Mastery Scale [52]

Self-efficacy

X

X

X

X

X

EuroQol 5D[53]

Health related quality of life

X

X

X

X

X

Carer-Qol [54]

Health related quality of life

X

X

X

X

X

SF12 [46]

Health related quality of life

X

X

X

X

X

Cost outcomes

Informal care

Economics evaluation

X

X

X

X

X

Quality of care

Quality indicators [43, 55]

Process of Care

X

X

X

X

X

Effect modifiers or confounders

Age

X

Education

X

Relation to person with dementia

X