Skip to main content

Table 3 Professionals' knowledge, practice, and attitudes at baseline and follow-up for intervention and control group.

From: Effect of an institutional development plan for user participation on professionals' knowledge, practice, and attitudes. A controlled study

 

Intervention

Control

Knowledge

Baseline

N = 891

Follow-up

N = 931

p-value

Baseline

N = 1331

Follow-up

N = 1231

p-value

1. Does your unit have a complaints procedure for users? (% yes)

47.7%

51.6%

0.601

66.7%

74.0%

0.202

5. Have you heard or read anything about consumer involvement and participation in the provision of mental health services? (% yes)

91.0%

91.3%

0.945

88.6%

95.0%

0.065*

8a. Does your unit solicit input from users for the planning of mental health services? (% yes)

69.7%

64.5%

0.460

74.2%

71.3%

0.600

8b. # Does your unit solicit input from user organisation for the planning of mental health services? (% yes)

47.2%

52.2%

0.503

36.4%

52.5%

0.010**

9. Does your unit routinely conduct user satisfaction service on the service it offers? (% yes)

34.1%

34.4%

0.964

37.9%

44.3%

0.301

10. Are users involved in the hiring decisions of your unit's staff? (% yes)

0%

0%

1.00

0%

2.5%

0.070*

11. Are users invited to participate in staff training meetings at your agency? (% yes)

3.4%

21.7%

0.000**

6.8%

15.6%

0.026**

12. Has your unit ever asked users to act as teachers at staff training events? (% yes)

7.9%

15.1%

0.129

16.8%

26.2%

0.067*

13. Does your unit sponsor events/forums that educate users about their rights and entitlements? (% yes)

37.1%

44.1%

0.336

61.1%

59.0%

0.739

21. # Does the unit have a users' committee? (% yes)

28.1%

39.1%

0.116

56.5%

54.5%

0.746

22. # Does the unit have representatives or spokespersons on behalf of the users? (% yes)

22.5%

31.5%

0.171

51.9%

53.3%

0.827

Practice

      

3. Are users told they have a right to see and/or correct their records? (% yes)

58.4%

71.1%

0.076*

58.3%

62.3%

0.519

4. Are users informed about the facts about confidentiality and privacy regarding information contained in those records? (% yes)

79.8%

81.5%

0.766

84.8%

89.4%

0.276

7. Do you tell users what goals are intended to be accomplished by the treatment? (% yes)

81.2%

89.8%

0.108

89.1%

95.9%

0.041**

25. # Do you have enough time to ensure users' participation? (Yes)

59.3%

60.9%

0.826

67.8%

69.1%

0.827

26. # In your opinion, are next of kin in general sufficiently involved? (% yes)

30.1%

28.6%

0.826

25.2%

33.9%

0.137

27. # How would you describe the collaboration with next of kin in general?(% very good/quite good)

44.6%

49.5%

0.520

42.3%

46.7%

0.481

28. # Do you inform users about relevant self-help groups and user organisations? (% yes)

85.4%

77.9%

0.213

78.4%

82.6%

0.412

Attitudes

      

6. In most cases, where does the responsibility for deciding the goals of treatment usually lie?

(% entirely/mostly the user)

6.8%

12.9%

0.172

12.0%

7.3%

0.204

14. Should users be involved in the evaluation of their presenting problems? (% always/usually)

87.5%

95.6%

0.050**

90.0%

94.3%

0.211

14a. Should users be involved in the diagnosis of their presenting problems? (% always/usually)

80.9%

84.8%

0.488

66.4%

72.4%

0.305

15. In your opinion, should users contribute to the writing of their notes and records? (% yes)

43.7%

41.6%

0.778

42.5%

38.0%

0.470

16. In your opinion, should users be involved in the planning of their own treatment? (% yes)

97.7%

98.9%

0.528

97.0%

100%

0.052*

17. How would mental health service change if users were employed by that service? (% improve)

71.6%

65.5%

0.396

56.2%

63.7%

0.241

19. How would mental health service change if users were involved in the planning and/or delivery of those services? (% improve)

90.7%

84.6%

0.220

81.7%

83.9%

0.656

23. # How would you describe the unit's general attitude towards user participation? (% quite good/very good)

32.2%

42.4%

0.158

61.8%

64.5%

0.665

24. # In your opinion, do users understand the information you give about their illnesses and treatment opportunities? (% yes)

98.8%

95.1%

0.182

95.9%

96.6%

0.783

18. In your opinion, what are the most important reasons when users of mental health care don't want to be involved?

      

- Too vulnerable (% yes)

36.0%

37.6%

0.814

42.9%

39.8%

0.624

- Lacking in self-confidence (% yes)

59.6%

39.8%

0.008**

60.2%

52.0%

0.191

- Lacking in ability or knowledge (% yes)

12.4%

9.7%

0.563

14.3%

17.9%

0.433

- Lacking in motivation (% yes)

51.7%

38.7%

0.079*

42.1%

43.9%

0.772

- Lack of trust in the ability of the services to provide help (% yes)

38.2%

28.0%

0.142

24.8%

25.2%

0.942

- Not wanting to have any further contact after getting better (% yes)

44.9%

40.9%

0.578

37.6%

39.0%

0.814

- Other reasons (% yes)

16.9%

7.5%

0.054*

18.0%

17.1%

0.838

20. In your opinion, if users were involved in planning and/or carrying out the mental health service, how would the service develop?

      

- Upgrading of services and delivery (% yes)

73.0%

65.6%

0.277

56.4%

59.3%

0.632

- Less burnout and stress for providers of those services (% yes)

11.2%

12.9%

0.730

9.0%

10.6%

0.677

- More chance that users would benefit from those services the first time round (% yes)

86.5%

75.3%

0.054*

71.4%

71.5%

0.984

- Less chance of the "revolving door" syndrome, where users keep returning with the hope of finding help (% yes)

27.0%

30.1%

0.639

27.1%

22.0%

0.342

- Downgrading of services and delivery (% yes)

1.1%

4.3%

0.190

5.3%

4.9%

0.888

- More burnout and stress for the providers of those services (% yes)

3.4%

7.5%

0.219

6.8%

6.5%

0.933

- That users would only be regarded as tokens by the professionals (% yes)

9.0%

10.8%

0.690

7.5%

6.5%

0.751

- That users would not understand the language used, and therefore find it difficult to give any input (% yes)

3.4%

4.3%

0.744

8.3%

9.8%

0.678

- Other developments (% yes)

7.9%

7.5%

0.932

9.0%

5.7%

0.310

  1. Proportions and test of difference within each group. Numbers are percentages of total N for each sample.
  2. 1 N is the no of participants who returned completed questionnaires. The N in the four samples varied for each question due to missing answers on the variables (0%-11%).
  3. # Questions marked # were added to the Consumer Participation Questionnaire (CPQ) in this study.
  4. * p < 0.1, ** p < 0.05,
  5. p-value calculated using Pearson's chi square test.