Theme | Dimension | Concepts |
---|---|---|
Building capacity | Science and research | Capacity for basic and clinical science; funding for clinical research; trained nurses/staff for clinical research. |
Skilled nurses | Capacity to train nurses for patient care and patient education and to provide qualified nursing support. | |
Research infrastructure | Capacity for clinical research; need for research laboratories; need for research equipment. | |
National statistics | Capacity to investigate local incidence and characteristics of breast cancer; IT capacity to support national registries and research. | |
Public education | Capacity for national public education and awareness campaigns on breast cancer and screening. | |
Developing evidence | Study of local etiology | Evidence identifying differences between local patients and those in the UK/USA; younger women; more aggressive tumor morphology. |
Personalized therapy | Evidence to promote personalized therapy; includes using genetic targets to tailor treatment. | |
Developing guidelines | Research in local populations and other evidence to inform local guidelines and policies; national treatment guidelines and coordination. | |
International networks | Connecting to evidence internationally; keeping up to date; global research programs, networking and education opportunities. | |
Local communication | Communicating evidence across stakeholders; improved communications between/within institutions and across institutions within areas or the country. | |
Removing barriers | Out-of-pocket costs | Barriers due to out-of-pocket expenses paid for by the patient. |
Disparities in access | Barriers for underserved and rural populations. | |
High cost to payers | Barriers to reimbursing high-cost treatments. | |
Early detection | Barriers to accessing earlier detection. | |
Reimbursement | Barriers to accessing therapies that are not yet proven to be cost effective. | |
Promoting advocacy | Patient empowerment | Strategies to empower patients/patient groups and inform consumers. |
Managing survivorship | Support increased focus on survivors; long-term side-effects and quality of life. | |
Quality of life | Support increased focus in research and practice on quality of life. | |
Metastatic disease | Support for the management of metastatic disease. | |
Organized advocacy | Support for leadership and staffing of advocacy groups; communication between advocacy groups. |