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Table 1 Participants and patient characteristics.

From: "Fighting the system": Families caring for ventilator-dependent children and adults with complex health care needs at home

Interview #

Participant's relationship to the ventilator-dependent family member

Years with tracheostomy and home mechanical ventilation

1

Mother and father

10

2

Mother and father

10

3

Wife

10

4

Husband

11

5

Mother

16 + 16

6

Mother and father

8

7

Mother and father

11

8

Wife

12

9

Wife and daughter

3

10

Husband

11