Table 3 Patient organisations that did not respond to the request to participate in the study

Non-responding patient organisations:

   - Centrum ZitStil (ADHD), Belgium

   - Association Parkinson, Belgium

   - Diabetesforeningen, Denmark

   - Asthma and Allergy Forbundet, Denmark

   - Scleroseforeningen, Denmark

   - ADHD-foreningen, Denmark

   - Addison Foreningen, Denmark

   - Diabetesliitto, Finland

   - Suomen MS-liitto ry, Finland

   - ADHD liitto ry, Finland

   - Suomen Parkinson-liitto ry, Finland

   - Addison Support group, Finland

   - French Federation of Cardiology, France

   - Association Française des Diabétiques, France

   - Association Asthme & Allergies, France

   - Lique Francaise contre la Sclérose en Plaques, France

   - Association France Parkinson, France

   - Association Surrenales, France

   - Herzstiftung, Germany

   - Deutsche Diabetes-Union, Germany

   - German Allergy and Asthma Association (DAAP), Germany

   - Deutsche Multiple Sklerose Gesellschaft (DMSG), Germany

   - Bundesverband Arbeitskreis Überaktives Kind, Germany

   - PARKINSonLINE e.v. (PAoL), Germany

   - Netzwerk Hypophysen- und Nebennierenerkrankungen, Germany

   - Irish Heart Foundation, Ireland

   - Multiple Sclerose Society (MSI), Ireland

   - The North Fingal ADD/ADHD Parent and Adult Support Group, Ireland

   - Diabetesvereniging, Netherlands

   - Coalitie of Astmafonds, Vereniging Nederlands Davos & Astmapatiënten, Netherlands

   - Balans & Impuls, Netherlands

   - Heart and Lung Association, Sweden

   - Neurologiskt Handikappades Riksforbund (NHR), Sweden

   - Parkinson Förbundet, Sweden

   - Stödföreningen Hypophysis, Sweden

   - Swiss Diabetes Society, Switzerland

   - Coalition of aha! Zentrum für Allergie, Haut und Asthma, Switzerland

   - Schweizerische Multiple Sklerose Gesellschaft (SMSG), Switzerland

   - Interessengruppe Aufmerksamkeitsdefizit-Syndrom, Switzerland

   - Parkinson Schweiz, Switzerland

   - British Heart Foundation, United Kingdom

   - Diabetes UK, United Kingdom

   - Asthma UK, United Kingdom

   - MS Society, United Kingdom

   - Thanet ADDers ADD/ADHD Support Group, United Kingdom

   - Parkinson's Disease Society, United Kingdom

   - Addison's Disease Self Help Group, United Kingdom/Ireland