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Table 2 Patient and carer outcome measures

From: Development and Evaluation of a Psychosocial Intervention for Children and Teenagers Experiencing Diabetes (DEPICTED): a protocol for a cluster randomised controlled trial of the effectiveness of a communication skills training programme for healthcare professionals working with young people with type 1 diabetes

Outcome

Measure

Respondents

Diabetes-specific quality of life

Paediatric Quality of Life Inventory (PEDSQoL diabetes module: 11 items [40])

Patient (11+yrs), parent proxy (patients 5-11 yrs), parent

 

Problem Areas in Diabetes (PAID: 23 items [41])

 
 

2 global items to assess change in QoL (follow-up only)*

 

Perceptions of health care provider

Health Care Climate Questionnaire (HCC: adapted from 7 to 5-point scale [43])

Patient, parent

 

3 additional items (respondents asked to circle an emotion to indicate anticipatory feelings towards going to clinic)*

 
 

Patient Enablement Inventory (PEI: 6 items [44])

 
 

Continuity of Care Scale (8 items [45])

 

Self-efficacy

Perceived Competency Scale (4 items [43])

Patient, parent

Self-care

'Mis-management' (4 items adapted from Weisberg-Benchall et al. [42])

Patient (11+yrs), parent proxy (patients 5-11 yrs)

 

Importance of self-care (6 items)* and confidence in ability (6 items)*

Patient, parent

  1. *Indicates items created specifically for use in the current evaluation