From: Reorganizing pediatric rehabilitation services to improve accessibility: do we sacrifice quality?
Items identified as areas for improvement (scored ≤ 4 by > 33% of respondents) | % of scores ≤ 4 for the total sample (3 years) | Identified in 2007 | Identified in 2008 | Identified in 2009 |
---|---|---|---|---|
Showing Interpersonal Sensitivity (4/10 items identified at least once as areas for improvement in this domain) | ||||
Q12. Help each family to secure a stable relationship with at least one service provider who works with the child and parents over a long period of time? | 57.8% | √ | √ | √ |
Q11. Let parents choose when to receive information and the type of information they wanted? | 50.4% | √ | √ | √ |
Q9. Anticipate parents' concerns by offering information even before they ask? | 46.1% | √ | √ | √ |
Q8. Discuss/explore each family's feelings about having a child with special needs (e.g. their worries about their child's health or function)? | 45.0% | √ | √ | √ |
Providing general information (5/5 items identified at least once as areas for improvement in this domain) | ||||
Q26. Provide opportunities for the entire family, including siblings, to obtain information? | 76.8% | √ | √ | √ |
Q23. Promote family-to-family "connections" for social, informational or shared experiences? | 75.0% | √ | √ | |
Q25. Provide advice on how to get information or to contact other parents (e.g., through a community's resource library, support groups, or the internet)? | 62.2% | √ | √ | √ |
Q27. Have general information available about different concerns (e.g., financial costs or assistance, genetic counseling, respite care, dating and sexuality)? | 61.3% | √ | √ | √ |
Q24. Provide support to help families cope with the impact of their child's chronic condition (e.g., informing parents of assistance programmes, or counseling how to work with other service providers)? | 44.8% | √ | √ | |
Communicating Specific Information About The Child (2/3 items identified at least once as areas for improvement in this domain) | ||||
Q15. Provide parents with written information about their child's condition, progress, or treatment? | 44.0% | √ | √ | √ |
Q16. Tell parents details about their child's services, such as the types, reasons for, and durations of treatment/management? | 17.5% | √ | ||
Treating People Respectfully (0/9 Items identified as areas for improvement in this domain) |