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Table 1 Sample: persons with dementia, family carers and professional caregivers

From: How do persons with dementia participate in decision making related to health and daily care? A multi-case study

Case

MMSE

DAD

NPI – severity of symptoms

Residence

Services

Family carer

Prof. care-giver

Mr

23

74%

Agitation: 3

Nursing home

Special dementia unit

Spouse

EN

A

Anxiety: 3

Apathy: 3

Abnormal motor behaviour: 2

Mrs

20

73%

Depression: 3

Flat - lived alone

Home nursing 3 times/day; day centre for persons with dementia 5 days/week

Sister

RN

B

Mrs

22

80%

Depression: 4

Sheltered housing

Home nursing 2 times/day; general day centre 4 days/week

Daughter-in-law

EN

C

Mrs

22

85%

Agitation: 4

Sheltered housing

Home nursing 3 times/day; general day centre 4 days/week; housecleaning and laundry 1.5 hour/fortnight

Son

EN

D

Depression: 3

Apathy: 3

Eating behaviour: 3

Mrs

21

81%

Depression: 4

Nursing home

General ward

Son

NA

E

Anxiety: 4

Eating behaviour: 4

Mr

21

69%

Loss of conditioned reflex: 2

Flat - lived with wife

General day centre 2 days/week

Spouse

EN

F

Miss

21

78%.

Depression: 3

House - lived alone

Home nursing 3 times/day; general day centre 2 days/week; housecleaning 1 hour/week; meals-on-wheels 3 times/week; weekly visitor

Brother

EN

G

Anxiety: 2

Miss

21

68%

0

Sheltered housing

Special dementia unit

Niece

NA

H

Mrs

20

71%

Delusions: 2

House - lived alone

Home nursing 2–3 times/day; day centre for persons with dementia 5 days/week; housecleaning 1,5 hours/fortnight

Daughter

EN

I

Eating behaviour: 3

Mrs

20

80%

0

House - lived with husband

Day centre for persons with dementia 2 days/week

Spouse

RN

J

  1. Abbreviations.
  2. MMSE – Minimal Mental State Examination – moderately demented 20–25 points, max. 30 points.
  3. DAD – Disability Assessment for Dementia – measures initiative, capacity to plan and executive functioning (hygiene, dressing, continence, meals, using telephone, managing correspondence and financial matters, household chores and leisure activities).
  4. NPI – Neuropsychiatric Inventory rates severity of psychiatric symptoms and behavioural disturbances.
  5. Professional caregiver:
  6. RN – registered nurse.
  7. EN – enrolled nurse.
  8. NA – nurse aid.